New Website on Severe ME

[Naomi10]

I have created a website on severe ME:

“A Life Hidden is dedicated to those shut away from the world because of the intense suffering of ME (myalgic encephalomyelitis). This site is a collection of my advocacy work, and I hope that it will serve as a resource for anyone wishing to understand more about the illness.

In raising awareness of ME, my greatest inspiration comes from friends and loved ones whose every moment is consumed by the most extreme physical suffering. They are alone and forgotten by the world, but every day demonstrate the most immense courage, simply by continuing their struggle to survive.

Through my writing, I have become less hidden. I want to use my voice to speak for those who cannot.”

www.alifehidden.com

 

[Skycloud]

Hi @Naomi10, can you post a link to your website?

 

[Peter T]

https://alifehidden.com/

 

[Barry]

Excellent. Good to see you here @Naomi10 .

 

[Invisible Woman]

Welcome @Naomi10. It's great to have you here .

 

[It's M.E. Linda]

Hello Naomi, welcome! I hope things are ‘well’ for you at the moment. Congratulations on the new blog.

 

[Patient4Life]

Through my writing, I have become less hidden. I want to use my voice to speak for those who cannot.

 

[Sly Saint]

welcome @Naomi10
you've already 'been posted' here:

https://www.s4me.info/posts/125106/

but lovely to have you here in person.

 

[Naomi10]

Thank you, everyone. Not sure quite how I managed not to include the web link, but I've amended the original post! Thanks to Peter for including it in the comments

 

[Andy]

When living with severe ME, making plans can amount to an act of defiance. No matter how carefully laid those plans, no matter how great the determination behind them, there is always the knowledge that they can unravel at any moment, through no fault of your own.

When I began my blog last November, my plan was to write here regularly. My relatively stable health at that point made it a reasonable expectation. The intervening months, however, have not been kind. The winter brought a chain of debilitating viruses, followed by the serious illness and death of a close relative. Not surprisingly, the impact has been considerable. Until now, even a brief update like this has been beyond my physical and cognitive abilities.

https://alifehidden.com/2019/05/05/hidden-but-still-here/