Lovely to discover MERespite, an organisation whose list of what the fundraising is for actually looks like it cares, is not so very far away. Nice to know
If I recall correctly, ME Respite was created by a former nurse who has severe ME. There is a Board of Trustees and they have an office in Auckland and volunteers. I signed up a few years ago to do mentoring but then became too unwell to do this. They also have a craft group where you can make items for their ME op shops which are in Auckland. I get phone calls every so often asking how I am and if I need help which is nice to know for when I might need more support. The support is mostly Auckland based eg they drop off easy meals but if out of town they can get you a small discount on your online shopping (from the former Countdown, not sure if it is now with it's replacement Woolworths). It's a bit convoluted a process but once learnt could be useful to save money.
I don't think we have listed MERespite on our list of ME/CFS organisations yet. Good to hear more about them @hibsicuswahine. I'll add them to our list.