News from Australia

[dave30th]

news of Alem's improvement is very welcome indeed.

very much so.

 

[ScoutB]

I did not know Alem’s history, thanks very much for sharing. He said:

[…] I am still bedbound now, still unable to talk, or listen to music, or watch TV. But I will do more when able to, this is a natural instinct or process and needs no intrusive input from others. It happens whenever people get over a cold or flu, I doubt there are tens of millions of people getting stuck in a vicious self-perpetuating cycle of symptoms, fear avoidance, deconditioning, and symptom focusing. It just goes against human nature […]

Very well said. My early experiences relapsing and remitting and returning each time to as much work and exercise as I could are in total agreement with this. When healthy, we naturally increase our activities and fill our lives.

 

[MeSci]

I sincerely hope that Alem's recovery continues. Many thanks to @dave30th for the info.

 

[SNT Gatchaman]

$28 million for research into Post-Acute Sequelae of COVID-19
Applications are open for the 2024 Post-Acute Sequelae of COVID-19 grant opportunity. Funding is from the Medical Research Future Fund (MRFF).

Dedicated thread for $4.7 million for UNSW researchers to investigate long COVID

 

[SNT Gatchaman]

Email from OMF today (I haven't found a news article yet but will post when spotted) —

We are very pleased to share that Dr Christopher Armstrong and his team at Open Medicine Foundation's (OMF's) Melbourne ME/CFS Collaboration have been awarded nearly $1 million ($999,977.50) through the Medical Research Future Fund (MRFF) Post-Acute Sequelae of COVID-19 (PASC) Stream 1 grant, for the project Energy inefficiency in Long COVID and ME/CFS.

Importantly, this funding is a direct response to the Australian Government’s Long COVID Inquiry, Sick and tired: casting a long shadow. While the inquiry committed $50 million to Long COVID research, Recommendation 8 specifically called for dedicated investment in ME/CFS research, which has historically received limited Australian government funding despite now affecting an estimated 930,000 Australians.

 

[Dolphin]

Chronic Fatigue Syndrome new research - ABC listen

New Australian research confirms people with ME/CFS have a consistent faulty cellular structure. Could this be a turning point in diagnosis?

www.abc.net.au

Program:Chronic Fatigue Syndrome new research​

Program:Nightlife
2 hours ago
Play
Duration: 26 minutes 6 seconds 26m



It has long been one of the most complicated and complex medical conditions and routinely dismissed by friends, family and even medical professionals because - maybe it's in your head?

Myalgic Encephalomyelitis or Chronic Fatigue Syndrome has never had a one-stop reliable diagnostic test, the cause can be unknown and the symptoms are broad.

The only sure thing is how debilitating it is to have ME/CFS.

But my next guests have dedicated years of their professional careers to ME/CFS .. one in the lab, the other in the doctor's surgery.

The Director of Griffith University's National Centre for Neuroimmunology and Emerging Diseases (NCNED) and senior author of a new Australian study that could be a turning point for understanding and treatment of ME/CFS .. Professor Sonya Marshall-Gradisnik and Dr Peter Smith - a clinician who treats ME/CFS patients and allergy specialist with a PhD in molecular biology joined Bern Young on Nightlife.

​