News from Australia

I did not know Alem’s history, thanks very much for sharing. He said:
[…] I am still bedbound now, still unable to talk, or listen to music, or watch TV. But I will do more when able to, this is a natural instinct or process and needs no intrusive input from others. It happens whenever people get over a cold or flu, I doubt there are tens of millions of people getting stuck in a vicious self-perpetuating cycle of symptoms, fear avoidance, deconditioning, and symptom focusing. It just goes against human nature […]
Click to expand...
Very well said. My early experiences relapsing and remitting and returning each time to as much work and exercise as I could are in total agreement with this. When healthy, we naturally increase our activities and fill our lives.
 
Email from OMF today (I haven't found a news article yet but will post when spotted) —

We are very pleased to share that Dr Christopher Armstrong and his team at Open Medicine Foundation's (OMF's) Melbourne ME/CFS Collaboration have been awarded nearly $1 million ($999,977.50) through the Medical Research Future Fund (MRFF) Post-Acute Sequelae of COVID-19 (PASC) Stream 1 grant, for the project Energy inefficiency in Long COVID and ME/CFS.
Click to expand...

Importantly, this funding is a direct response to the Australian Government’s Long COVID Inquiry, Sick and tired: casting a long shadow. While the inquiry committed $50 million to Long COVID research, Recommendation 8 specifically called for dedicated investment in ME/CFS research, which has historically received limited Australian government funding despite now affecting an estimated 930,000 Australians.
Click to expand...
 
www.abc.net.au

Chronic Fatigue Syndrome new research - ABC listen

New Australian research confirms people with ME/CFS have a consistent faulty cellular structure. Could this be a turning point in diagnosis?
www.abc.net.au www.abc.net.au


Program:Chronic Fatigue Syndrome new research​

Program:Nightlife
2 hours ago
Play
Duration: 26 minutes 6 seconds 26m



It has long been one of the most complicated and complex medical conditions and routinely dismissed by friends, family and even medical professionals because - maybe it's in your head?

Myalgic Encephalomyelitis or Chronic Fatigue Syndrome has never had a one-stop reliable diagnostic test, the cause can be unknown and the symptoms are broad.

The only sure thing is how debilitating it is to have ME/CFS.

But my next guests have dedicated years of their professional careers to ME/CFS .. one in the lab, the other in the doctor's surgery.

The Director of Griffith University's National Centre for Neuroimmunology and Emerging Diseases (NCNED) and senior author of a new Australian study that could be a turning point for understanding and treatment of ME/CFS .. Professor Sonya Marshall-Gradisnik and Dr Peter Smith - a clinician who treats ME/CFS patients and allergy specialist with a PhD in molecular biology joined Bern Young on Nightlife.

​

 
From Emerge’s Facebook:

ME/CFS Alliance Australia and co-chair Dr Mike Freelander MP invite you to attend the first, 2026 meeting of the Parliamentary Friends of ME/CFS group.

This meeting will bring together members of parliament clinicians, researchers, and people with lived experience to highlight the urgent and growing needs of Australians living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Date: Tuesday, 10 March 2026
Time: 11:00am – 1pm AEDT (May finish earlier)
Venue: Online via Zoom

Register for Zoom here - https://zurl.co/fyADw
For in-person attendance at Australian Parliament House Canberra email information@emerge.org.au as seating is limited.

Fibromyalgia ME CFS Australia Bridges & Pathways ME Advocacy Network Australia ME/CFS Australia Myalgic Encephalomyelitis Group Australia Ltd Dr Mike Freelander MP Mark Butler MP

#mecfsallianceaustralia #mecfsadvocacy #FairGoForME
 
Dolphin said:
From Emerge’s Facebook:

ME/CFS Alliance Australia and co-chair Dr Mike Freelander MP invite you to attend the first, 2026 meeting of the Parliamentary Friends of ME/CFS group.

This meeting will bring together members of parliament clinicians, researchers, and people with lived experience to highlight the urgent and growing needs of Australians living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Date: Tuesday, 10 March 2026
Time: 11:00am – 1pm AEDT (May finish earlier)
Venue: Online via Zoom

Register for Zoom here - https://zurl.co/fyADw
For in-person attendance at Australian Parliament House Canberra email information@emerge.org.au as seating is limited.

Fibromyalgia ME CFS Australia Bridges & Pathways ME Advocacy Network Australia ME/CFS Australia Myalgic Encephalomyelitis Group Australia Ltd Dr Mike Freelander MP Mark Butler MP

#mecfsallianceaustralia #mecfsadvocacy #FairGoForME
Click to expand...
Also:

ME/CFS Alliance Australia needs your voice - and your MP needs to hear from you!

The Parliamentary Friends of ME/CFS meeting is happening on 10 March and ME/CFS Alliance Australia has sent invitations to all federal parliamentarians.

We need as many MPs and Senators as possible in the room to hear lived experience, see the evidence, and understand the urgent need for action.

You can help right now: send a pre‑written email to your MP in just 2 minutes.
Take action here: https://zurl.co/QXG3B

Your voice matters. Your story matters. And your MP won’t know unless you tell them.

Let’s fill that room on 10 March and make ME/CFS impossible to ignore.

Fibromyalgia ME CFS Australia Bridges & Pathways ME Advocacy Network Australia ME/CFS Australia Myalgic Encephalomyelitis Group Australia Ltd Dr Mike Freelander MP Mark Butler MP

#FairGoForME #MECFSAllianceAustralia
 
www.nationaltribune.com.au

New National Project to Improve Care for Australians Living With Long Covid

A new project by researchers at the University of Tasmania’s Menzies Institute for Medical Research will deliver a care model for Long COVID that aims
www.nationaltribune.com.au www.nationaltribune.com.au

PERCEIVE-Outreach Project
A new project by researchers at the University of Tasmania’s Menzies Institute for Medical Research will deliver a care model for Long COVID that aims to improve health outcomes and enhance quality of life – while easing pressure on the healthcare system.
Click to expand...

To ensure it can meet real-world needs, this project will be fully remote and co-designed with patients, clinicians, and health services. A large trial will evaluate its effectiveness, feasibility, and sustainability across Australia.
Click to expand...

The project aims to reduce hospitalisations, improve quality of life, and deliver strong returns on investment for health services by maximising resource efficiency.
Click to expand...

Key features of the project:
  • Co-design and scaling: Working with patients, clinicians, and health services to adapt and refine the intervention for national rollout.
  • Risk-based approach: Using a novel algorithm to identify patients most at risk of physical and cardiac dysfunction.
  • Remote delivery: Making care accessible to people wherever they live.
  • Rigorous evaluation: Conducting a randomised controlled trial to test effectiveness and sustainability.
Click to expand...
 
You must log in or register to reply here.
Back
Top Bottom