News from France

[Yann04]

Face à une attitude de suspicion et de déni du caractère organique de leurs symptômes, ces personnes ont été contraintes à une errance thérapeutique insatisfaisante et dangereuse.

Translation

Faced with an attitude of suspicion and denial of the organic nature of their symptoms, these people were forced to an unsatisfactory and dangerous therapeutic wandering.

Good commentary on bsky by Après J20 Long COVID association:

 

[ahimsa]

"Faced with an attitude of suspicion and denial of the organic nature of their symptoms, these people were forced to an unsatisfactory and dangerous therapeutic wandering."

Thanks for that translation, @Yann04

Something about that quote really hits home. I'm sure many of us have had that feeling of wandering in the wilderness (often for many years) hoping for some kind of treatment that would help.

 

[MaudSac]

New French article about MECFS, related to a previous initiative held in Marseille by voxEM collective (founded early 2026)

voxEM bluesky post :

Direct link to the article : https://cqfd-journal.org/Encephalomyelite-myalgique-une

The article introduction (auto translation) :

Mistreated - Myalgic Encephalomyelitis: A Battle Fought to the Brink of Exhaustion

Myalgic encephalomyelitis affects at least 450,000 people in France, who face direct denial from health authorities, sexism from the medical profession, and neglect by the government due to a lack of research into treatments and social protection. Yet the disease is widespread.

I’d like to take this opportunity to identify myself as a co-founder of the voxEM collective

I’m probably not objective, but this article is one of the few published in France that accurately addresses ME/CFS and the medical and institutional neglect suffered by pwME

 

[Yann04]

I’d like to take this opportunity to identify myself as a co-founder of the voxEM collective

Trop cool! Thank you for your work!!

 

[Hutan]

@MaudSac, well done to you and the VoxEM team for helping to make ME/CFS visible.

If you make a post with the contact details on the thread listing charities, we can add VoxEM to our list.

 

[Yann04]

Direct link to the article : https://cqfd-journal.org/Encephalomyelite-myalgique-une

I slowly read the article over an hour and yes this is absolutely great. I think it’s the only article I’ve ever read in french that doesn’t feel even slightly sugarcoating or minimising.

 

[rvallee]

I slowly read the article over an hour and yes this is absolutely great. I think it’s the only article I’ve ever read in french that doesn’t feel even slightly sugarcoating or minimising.

And there's really not a lot of that. We don't have much to work with in Québec because of that, a small French population in a large anglo continent.