This is an all extremely confusing .. and I regret using energy to try and understand it!
News from PolyBio Research Foundation
- Thread starter SNT Gatchaman
- Start date
bicentennial
Senior Member (Voting Rights)
Oh well, if we must put it like that lol, yes, in a nutshell. As "everybody stated" it fits better with anything at all similar. It was quite a wiggle to call CCI a form of ME/CFS.
I am sorry @Braganca. Thankyou for telling me and I am honoured that you tried.
Alerted, I put it in a Spoiler so it can be skipped. If can I'll tidy it up some more
I would like VanElzzaker to say if he too believes that CCI is a form of ME/CFS. I would like to know what else his fMRI can usefully scan for.
Chandelier
Senior Member (Voting Rights)
Archived version without geoblock.
Steve Pagliuca, former co-owner of the Boston Celtics, is helping fund research into long COVID after his son Jesse’s battle with the condition.
"It all started for us when one of my sons called us and said he was very sick in New York, and we actually jumped in the car from Boston and drove down to New York to pick him up," Pagliuca said.
Jesse, who has long COVID, said the condition makes him feel like he always has the flu. Even walking for more than 20 minutes can leave him depleted for days.
Here’s the bad part:
Pagliuca and his wife, Judy, are part of a donor coalition that has raised $15 million for PolyBio Research Foundation, which is studying long COVID in Medford, Massachusetts. The funding will support new tests and clinical trials for potential treatments.
Pagliuca and his wife, Judy, are part of a donor coalition that has raised $15 million for PolyBio Research Foundation, which is studying long COVID in Medford, Massachusetts. The funding will support new tests and clinical trials for potential treatments.
@Andy, maybe someone for SequenceME funding?
Dude
Senior Member (Voting Rights)
Jesus fucking christ...
neophyte32
Senior Member (Voting Rights)
For the past few years, PolyBio has become a magnet for grants and donations of all kinds. They've received phenomenal amounts of money and delivered absolutely zero, zero, zero results. It's a scandal.
American research into Long COVID and ME/CFS seems to have been completely taken over by PolyBio. It's incredibly frustrating.
And judging by the description of the billionaire's son's symptoms, I can't help thinking of PEM, and therefore ME/CFS.
But anyway, I suppose we'll just carry on pretending that PolyBio is doing something useful while they continue conducting research that leads nowhere.
Meanwhile, the research that really matters, the research that actually deserves funding, remains desperately underfunded.
I'm so sick and tired of this.
American research into Long COVID and ME/CFS seems to have been completely taken over by PolyBio. It's incredibly frustrating.
And judging by the description of the billionaire's son's symptoms, I can't help thinking of PEM, and therefore ME/CFS.
But anyway, I suppose we'll just carry on pretending that PolyBio is doing something useful while they continue conducting research that leads nowhere.
Meanwhile, the research that really matters, the research that actually deserves funding, remains desperately underfunded.
I'm so sick and tired of this.
bicentennial
Senior Member (Voting Rights)
I expect the Parks and Pagliucas will take a closer look at cranial interventions. It was last April these two families chipped in £10 million. The news now, 6 months later, is only the Pagliucas chipped in more, upon another layer of "growing evidence". So it still looks all very promising. A steep learning curve.
In the early rounds, it did seem strategic at the time - very excitable - whooping it up to engage the more established ME/CFS researchers, then obtain exciting video interviews with them, as if collecting their endorsements for presentation to funders.
However, the money doled out by PolyBio is tied up in contracts with people and organisations expecting results. Yes, it is possible to keep people hooked on a misleading promise with alarm thrown in, forking out for nothing, again. That is why personal wealth tends to be tied up, with safeguards, and shared interests in common.
Now it seems largely up to several well-known USA researchers who need to protect their profession from disrepute, start drawing a line, retract their own mistakes in a scientific manner and call out the "preliminary" research that is so misleading.
I think the apple fell for Newton, and penicillin cropped up in a lab, so we can still expect someone to trip over an unexpected phenomenon and recognise it, on the cheap, while we wait for the UK to buckle down and Germany to hold on. Australasia may flirt with an unproven therapy. France got the point and saw it squelched, but in the open. We certainly are waiting for something unprecedented to happen in our life-times.
The funding - if is not a tax write-off and not money-laundering- then funders do not want to get hooked, gambling on pie in sky. We all heard about the pet scams when there is always another payment for an animal lover to make before the exotic bird or dog can be released and shipped.
I do not find PolyBio's researcher Dr Murukami credible. I doubt that Michael VanElzakker can give him credence for long. He cannot string his science together. He says things like:
"...post chronic inflammatory conditions after an infection" (Dr. Murukami). ???
In the early rounds, it did seem strategic at the time - very excitable - whooping it up to engage the more established ME/CFS researchers, then obtain exciting video interviews with them, as if collecting their endorsements for presentation to funders.
However, the money doled out by PolyBio is tied up in contracts with people and organisations expecting results. Yes, it is possible to keep people hooked on a misleading promise with alarm thrown in, forking out for nothing, again. That is why personal wealth tends to be tied up, with safeguards, and shared interests in common.
Now it seems largely up to several well-known USA researchers who need to protect their profession from disrepute, start drawing a line, retract their own mistakes in a scientific manner and call out the "preliminary" research that is so misleading.
I think the apple fell for Newton, and penicillin cropped up in a lab, so we can still expect someone to trip over an unexpected phenomenon and recognise it, on the cheap, while we wait for the UK to buckle down and Germany to hold on. Australasia may flirt with an unproven therapy. France got the point and saw it squelched, but in the open. We certainly are waiting for something unprecedented to happen in our life-times.
The funding - if is not a tax write-off and not money-laundering- then funders do not want to get hooked, gambling on pie in sky. We all heard about the pet scams when there is always another payment for an animal lover to make before the exotic bird or dog can be released and shipped.
I do not find PolyBio's researcher Dr Murukami credible. I doubt that Michael VanElzakker can give him credence for long. He cannot string his science together. He says things like:
"...post chronic inflammatory conditions after an infection" (Dr. Murukami). ???
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