Most up-to-date professionals have long since shelved the Lightning Process. Which raises the question of why the hell were they recommending such obvious methodological and ethical garbage in the first place?
When Prof Crawley published her LP for children study, I thought it would be the reductio ad absurdum of the whole PACE type methodology, however the reverse happened (presumably via cognitive dissonance) and the BPS establishment embraced LP. LP was so obviously a quack intervention, I foolishly thought ‘establishment’ researchers would realise with the LP study that their preferred methodology was so bad it would support any nonsense and thus undermine the identical rubbish studies advocating GET/CBT. However rather than abandon GET/CBT many have give st least tacit support for LP.
An important update from the Swedish Covid Association: Goda nyheter om Hjärt-kärlmottagningen Karolinska https://covidforeningen.se/goda-nyheter-om-hjartkarlmottagningen-karolinska/ Thank you so much for all your hard work, Swedish Covid Association! @MittEremltage comments on this on her blog today: Viktig information till personer med POTS som blivit utskrivna från Karolinska! https://mitteremitage.wordpress.com...ed-pots-som-blivit-utskrivna-fran-karolinska/
Good news, for a change Press release: Svenska Covidföreningen beviljas stöd till patienter med postcovid https://covidforeningen.se/svenska-covidforeningen-beviljas-stod-till-patienter-med-postcovid/ News article (audio, in Swedish, 2 minutes): Unga med postcovid ska få bättre stöd i skolan https://sverigesradio.se/artikel/unga-med-postcovid-ska-fa-battre-stod-i-skolan The Swedish Inheritance Fund (Allmänna arvsfonden) is described by government.se as follows: "If a deceased person has no spouse or close relatives and has not left a will, his/her property goes to the Swedish Inheritance Fund. The Fund supports non-profit organisations and other voluntary associations wishing to test new ideas for developing activities for children, young people, older people and the disabled." More info here, in Swedish: https://www.arvsfonden.se/om-allman...hur-kommer-pengar-in-till-allmanna-arvsfonden
On Swedish morning TV (9 minutes, available to watch online through the link below): Artistens tuffa tid efter sjukdomen: ”Visste inte om jag skulle bli frisk” https://www.tv4.se/artikel/5Ke8RoGL...a-med-postcovid-den-tuffaste-tiden-i-mitt-liv
That's wonderful news, and a huge amount of money! Also wonderful that this work will be done by the Covid Association, and not BPS people. I wonder if they'd be interested in cooperating with, or building upon the work done by the Norwegian ME Association who developed a course for teachers about pupils with ME. It's also in Swedish version. https://www.meochskola.se/
Läkartidningen: Covidföreningen startar nytt projekt för att stötta unga med postcovid https://lakartidningen.se/aktuellt/...tt-projekt-for-att-stotta-unga-med-postcovid/
I am going to spend 2 weeks in Norway this June traveling between Bergen and Kristiansund. Even though it will be family time, I would love to meet some of you for a few hours, if possible. It’s always great to interact with all of you. I did this a couple of years back in Belfast and it became a memorable afternoon for me. If there are any ME patient community in Bergen area and would like to meet me formally or informally, let me know by email.
Job ad: Gör skillnad – arbeta med helt nytt postcovidprojekt https://covidforeningen.se/jobba-hos-oss-2/
(Not about ME.) A Swedish opinion piece on Rituximab and ethical questions regarding treatment studies on people living with schizophrenia. ”Vår behandling kan rädda liv – men kanske får vi aldrig veta” https://www.dn.se/debatt/var-behandling-kan-radda-liv-men-kanske-far-vi-aldrig-veta/
Opinion piece written by the chairperson of RME (the Swedish ME Association). Sveriges usla ME-vård bidrar till att patienter begår självmord https://www.altinget.se/artikel/sveriges-usla-me-vaard-bidrar-till-att-patienter-begaar-sjalvmord
Extremely problematic article IMHO. I wrote an open letter to RME (Google translated link): https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp
Article in a local news paper this morning. This is the reality for so many of us. The government seems to believe they will be able to force us back to work if they just punish us enough financially. Fångad i fattigdom: ”Jag har inte råd med mat eller mediciner” https://www.smp.se/2025-01-12/fangad-i-fattigdom-jag-har-inte-rad-med-mat-eller-mediciner/
Chronicle by Agnes Arpi in Altinget today about society's betrayal of people with ME and post-COVID, illustrated by the collapse of the National Board of Health and Welfare, which is now proving to be larger than we have known so far. She reports that the Swedish Covid Association has therefore filed a complaint against the National Board of Health and Welfare: 'Recently, the Swedish Covid Association has chosen to file a complaint against the National Board of Health and Welfare. While the authority chose not to conduct a consultation round, the Covid Association and others nonetheless relied on the government's assignment description to the National Board of Health and Welfare, which emphasizes dialogue with patient representatives, and submitted several comments. These have, unlike other documents, never been registered, according to the Covid Association, which would be in violation of applicable law.'" Link: https://www.altinget.se/artikel/svenska-covidforeningen-jo-anmaler-socialstyrelsen Svenska Covidföreningen on X: https://twitter.com/user/status/1878757625304940848
The Parliamentary Ombudsmen (JO) are appointed by the Swedish Riksdag (parliament) to ensure that public authorities and their staff comply with the laws and other statutes governing their actions. "The SVBK ideology" refers to the Swedish medical "code word" and derogatory slur sveda-värk-brännkärringar (loosely translated as "hags with burning aches and pains"). In the 1970s and onwards doctors often used to put "SVBK" in the medical journals of female patients with symptoms along the lines of what we now know as CFS, fibromyalgia, endometriosis, PMS, or menopause. They choose less obvious code words nowadays, since patients have the right to read their own journals and can easily access them online.
Agnes Arpi recommends season 2 of the podcast Maran, by @MittEremltage. (I too very much recommend it!) The podcast is in Swedish but all the transcripts are available in full on the blog, so it's easily translated into English through deepl.com or Google Translate etc. Forum thread here: https://www.s4me.info/threads/sweden-maran-season-2-how-did-we-end-up-here.40230/
I hope you all have clicked through to read @MittEremltage's open letter to RME by now, it's really worth a read. RME has ignored the open letter so far, and has also closed their Facebook post for comments. @MittEremltage has published an informative follow-up piece to her excellent open letter, expanding on why we don't want what happened to the Norwegians to happen to us. Ett förtydligande av varför vi inte vill ha det som i Norge https://mitteremitage.wordpress.com...de-av-varfor-vi-inte-vill-ha-det-som-i-norge/ Google translate, English Sissel Sunde, Millions Missing Stavanger, has shared the blog post on their Facebook page, adding a link to Maran podcast and notes that the Nasjonal Kompetansetjeneste for CFS/ME links to the [hugely problematic Swedish podcast] Stressforskningspodden on their website, and that Maran scrutinizes Stressforskningspodden in season 2.
The Covid Association shares more details about their complaint to the the Parliamentary Ombudsmen (JO). The complaint -- which is about the national clinical guidelines for long covid and other post infectious conditions, which includes ME -- is also available to download in full as a pdf, through the link below. Covidföreningen JO-anmäler Socialstyrelsen https://covidforeningen.se/covidforeningen-jo-anmaler-socialstyrelsen/
@MittEremltage comments on the Swedish Covid Association's complaint to the Parliamentary Ombudsmen (JO): Om Svenska Covidföreningens JO-anmälan av Socialstyrelsen https://mitteremitage.wordpress.com...vidforeningens-jo-anmalan-av-socialstyrelsen/
