The Swedish Covid Association has published a hugely useful and really important document (21 pages, .pdf) about patient rights, which also incluces some tips about how to best prepare yourself before an appointment: Dina rättigheter som patient https://covidforeningen.se/vard-och-stod/dina-rattigheter-som-patient/ RME, the Swedish ME Association, has published a slightly edited copy of the Covid Association's document on their own website.
I have received a response to my open letter from RME. It can be read in the comments to the open letter on my blog. Google translated link: https://mitteremitage-wordpress-com..._tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp#comments In short, one could say that they do not address my criticism but talk about other things. Therefore, I chose to respond as follows: ”Hello and thank you for your comment. My criticism of your debate article follows two tracks. One concerns my belief that it is careless for you (and Altinget) to draw simplified conclusions about which ME patients take their own lives (I do not question that this happens nor that we need to talk about it). The other track concerns the fact that you seem to completely overlook the very problematic national guidelines from the National Board of Health and Welfare and the risks that this entails if the National Board is made responsible for a national knowledge center, to further educate the healthcare sector, or to establish a patient register. None of this is addressed in your response.”
