News from Scandinavia

Midnattsol said:
ME appears on the list of most cited diagnoses for young people on disability in Norway. Of those 18-29 on disability 3.9% are disabled due to Postviral fatigue syndrome/ME

Numbers can be found here
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Impressive for a condition that doesn't even exist and has had 100% effective treatments for decades, if we weren't so stupid. Or whatever.

How does it go again? Oh, yeah: reality is "that which, when you stop believing in it, doesn't go away.” - Philip K dick.
 
rvallee said:
Impressive for a condition that doesn't even exist and has had 100% effective treatments for decades, if we weren't so stupid. Or whatever.

How does it go again? Oh, yeah: reality is "that which, when you stop believing in it, doesn't go away.” - Philip K dick.
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Didn’t you know that kids dream of being on disability benefits instead of getting and education and job, and starting a family?

Got to think of the secondary gains, man!
 
Utsikt said:
3.9 % out of 22,400 = ~870 pwME/CFS on disability between the ages of 18-29. Although the number is probably higher because GPs can’t use G93.3 in Norway.
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When it comes so far as to be a disability payment question, I think most would have received an ICD code in their records as they would have visisted specialist services at some point. In contrast to for sick-leave payments where a GP can code A04 "fatigue" and that's enough for that particular type of social benefit.


But I agree the numbers are probably higher. One thing is the lack of ICD-10 in GP offices, another is that some are recommended to not apply for benefits with their ME/CFS diagnosis, rather with something else they may have that is more recognized. Despite ME being the most disabling condition.
 
Utsikt said:
Got to think of the secondary gains, man!
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More seriously, I think the secondary gains claim is actually a good angle of attack against the psycho-behavioural crowd.

Ask them what the alleged 'gains' are, as compared to the obvious major losses. Do a compare and contrast. There is no world in which any fair assessment is going to come out in favour of their ludicrous and cruel claim.
 
Sean said:
More seriously, I think the secondary gains claim is actually a good angle of attack against the psycho-behavioural crowd.

Ask them what the alleged 'gains' are, as compared to the obvious major losses. Do a compare and contrast. There is no world in which any fair assessment is going to come out in favour of their ludicrous and cruel claim.
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I’ve seen some of them claim that pwME/CFS are not able to cope with the demands of being healthy, so they cope by acting/being sick so their life is much more limited.

That obviously ignores how incredibly demanding it is to be severely ill, especially for a long time.
 
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