News in Brief - November 2026
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Week beginning 2nd November 2026
News, advocacy and articles
Bloomberg Chronic Fatigue (sic) Was Neglected for Decades. Then Came Covid
On increasing research effort into ME/CFS. Lucinda Bateman is interviewed and tells of her work over decades and of her sister, Shauna, who had ME. "For most of her career, Bateman says, the field lacked the science, funding and 'traction' needed to mount meaningful treatment trials. Now, at least, those trials have begun."
Article (archive) l Thread
Ireland - BCIL ME/CFS: “It’s Much More Than Fatigue”
Tom Kindlon on Living with the Condition and the Need for Better Support in Ireland
The Blanchardstown Center for Independent Living (BCIL) interviewed Tom Kindlon, a long-standing advocate with the Irish ME/CFS Association, for their Disability Matters radio show. A written summary of the show has been posted. An audio recording of the show will be available after about a week.
Written Summary | Thread
USA - #MEAction A Medicaid Win for Our Community in Court
A judge has ruled that "the Centers for Medicare & Medicaid Services (CMS) exceeded its authority" when adding a provision requiring people to prove they're too sick to work. However, the fight's not over: "Work requirements still start January 1, other harmful parts of the rule remain, and CMS may appeal."
Article | Thread
Bateman Horne Center A Fall 2026 Newsletter has been published.
Newsletter (PDF) | Thread
.......
Coming events
NIH RECOVER Seminar Understanding Long COVID's impact on the heart and lungs
Tuesday, November 10 at 12:00 pm ET
Announcement | Thread
Solve ME Webinar The SIGNAL Study: Using Home-Based Treatments to Advance ME/CFS and Long Covid Research
Tuesday, November 10, 3-4 pm Pacific Time / 6-7 pm Eastern Time
Announcement | Thread
.......
Research news and commentary
The Sick Times Live blog: RECOVER-TLC third annual workshop shares updates on Long COVID clinical trials
Discussion of the third annual RECOVER-Treating Long COVID (TLC) workshop, hosted by the National Institutes of Health (NIH) and Foundation for the National Institutes of Health (FNIH), held November 4-5.
Article | Thread
......
Research
ME/CFS research
Severe and very severe ME/CFS – when healthcare is out of reach: A qualitative study — Hackl et al
"Healthcare professionals proposed regional specialised outpatient services that could also provide expertise to healthcare professionals outside specialist centres, while participants across all groups described a need for specialised inpatient options when hospitalisation was required."
Preprint | Thread
Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Sclerosis are associated with lower translocator protein binding affinity genotypes — Jones and Younger
"This exploratory analysis arose from incidental observations during the course of a parent study and requires replication in larger, more diverse samples of both men and women."
Preprint | Thread
Long Covid research
Timing of Long COVID Improvement in Prospectively Followed RECOVER-Adult Participants — Reeder et al
"fatigue and postexertional malaise were common across all subtypes" "among those with LC subtype 5 (multisystem symptoms), the cumulative probability of improvement within 2 years was less than 1 in 5"
Article | Thread
Receptor-binding autoantibodies are not associated with post-COVID fatigue — Achleitner et al
"We found no significant differences in the concentrations of the measured receptor-binding autoantibodies between participants with new-onset fatigue, pre-existing fatigue, and controls without persistent fatigue." "Individual antibody concentrations were also not associated with fatigue severity."
Article | Thread
...........
S4ME social media: Forum, Mastodon, Bluesky
News, advocacy and articles
Bloomberg Chronic Fatigue (sic) Was Neglected for Decades. Then Came Covid
On increasing research effort into ME/CFS. Lucinda Bateman is interviewed and tells of her work over decades and of her sister, Shauna, who had ME. "For most of her career, Bateman says, the field lacked the science, funding and 'traction' needed to mount meaningful treatment trials. Now, at least, those trials have begun."
Article (archive) l Thread
Ireland - BCIL ME/CFS: “It’s Much More Than Fatigue”
Tom Kindlon on Living with the Condition and the Need for Better Support in Ireland
The Blanchardstown Center for Independent Living (BCIL) interviewed Tom Kindlon, a long-standing advocate with the Irish ME/CFS Association, for their Disability Matters radio show. A written summary of the show has been posted. An audio recording of the show will be available after about a week.
Written Summary | Thread
USA - #MEAction A Medicaid Win for Our Community in Court
A judge has ruled that "the Centers for Medicare & Medicaid Services (CMS) exceeded its authority" when adding a provision requiring people to prove they're too sick to work. However, the fight's not over: "Work requirements still start January 1, other harmful parts of the rule remain, and CMS may appeal."
Article | Thread
Bateman Horne Center A Fall 2026 Newsletter has been published.
Newsletter (PDF) | Thread
.......
Coming events
NIH RECOVER Seminar Understanding Long COVID's impact on the heart and lungs
Tuesday, November 10 at 12:00 pm ET
Announcement | Thread
Solve ME Webinar The SIGNAL Study: Using Home-Based Treatments to Advance ME/CFS and Long Covid Research
Tuesday, November 10, 3-4 pm Pacific Time / 6-7 pm Eastern Time
Announcement | Thread
.......
Research news and commentary
The Sick Times Live blog: RECOVER-TLC third annual workshop shares updates on Long COVID clinical trials
Discussion of the third annual RECOVER-Treating Long COVID (TLC) workshop, hosted by the National Institutes of Health (NIH) and Foundation for the National Institutes of Health (FNIH), held November 4-5.
Article | Thread
......
Research
ME/CFS research
Severe and very severe ME/CFS – when healthcare is out of reach: A qualitative study — Hackl et al
"Healthcare professionals proposed regional specialised outpatient services that could also provide expertise to healthcare professionals outside specialist centres, while participants across all groups described a need for specialised inpatient options when hospitalisation was required."
Preprint | Thread
Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Sclerosis are associated with lower translocator protein binding affinity genotypes — Jones and Younger
"This exploratory analysis arose from incidental observations during the course of a parent study and requires replication in larger, more diverse samples of both men and women."
Preprint | Thread
Long Covid research
Timing of Long COVID Improvement in Prospectively Followed RECOVER-Adult Participants — Reeder et al
"fatigue and postexertional malaise were common across all subtypes" "among those with LC subtype 5 (multisystem symptoms), the cumulative probability of improvement within 2 years was less than 1 in 5"
Article | Thread
Receptor-binding autoantibodies are not associated with post-COVID fatigue — Achleitner et al
"We found no significant differences in the concentrations of the measured receptor-binding autoantibodies between participants with new-onset fatigue, pre-existing fatigue, and controls without persistent fatigue." "Individual antibody concentrations were also not associated with fatigue severity."
Article | Thread
...........
S4ME social media: Forum, Mastodon, Bluesky