NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

Sorry but why can't I see Dr.Weir or Dr.Sheperd on the updated committee members list? Am i missing something :confused:
 
Response to concerns about the membership of our ME/CFS guideline committee

We are aware that the causes of ME/CFS and the treatments that should be made available are the subject of debate and disagreement. Many people living with the condition hold strong views on both questions. Because of this, we are working to ensure that the membership of the guideline committee, when complete, will contain a balance of those who have expressed clear views, together with those who have not taken a position on the currently available evidence.

As a result of concerns raised with the appointments made so far we have reviewed the appointments and we consider that they are appropriate and that
any interests that the committee members have declared can be managed using our conflicts of interest policy.

The proposed committee membership includes people with a range of views, and is balanced between those with differing views. We will ensure that this balance is maintained as far as is possible in the final appointments yet to be made.

It is important that the guideline committee has the experience and expertise to consider the published evidence and to take account of the views of people who receive and who provide care for this condition. Our arrangements for appointing the chair, vice chair and the members of guideline committees are designed to ensure that the opportunity to take part is advertised and that appointments are made on merit.

We hope that you will allow the guideline committee to begin its work and judge it not on the basis of the reported views of those who sit on it, but by how it interprets the evidence and the way in which it takes account of individual perspectives and experience. There will be the opportunity to comment on the draft recommendations as part of our consultation process.

November 2018
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https://www.nice.org.uk/guidance/gid-ng10091/documents/committee-member-list-2

I've quoted the whole document/statement as I suspect that the file name will be changing at some point in the near future.
 
University of Bath

Dr Jo Daniels announced as member of new NICE Committee
Senior Lecturer in Clinical Psychology, Jo Daniels, has been announced as a member of the NICE committee focusing on ME / Chronic Fatigue Syndrome.
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Commenting on her appointment, Dr Daniels said: “I am pleased to be joining the new NICE committee panel in developing new guidance on the management and treatment of ME/CFS. I look forward to the opportunity to contribute to scientifically-robust policy development in the field, particularly from a psychologically informed perspective.
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https://www.bath.ac.uk/announcements/dr-jo-daniels-announced-as-member-of-new-nice-committee/
 
Amw66 said:
"Scientifically robust" seems like an oxymoron in this context.
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I am more sanguine. I think the members of the committee will find themselves in the midst of scientifically robust policy development. Whether or not they engage is up to them but no wool pulling over eyes is going to occur. The list of members is not yet complete I think, but some frighteningly sensible people have been taken on. If I was intending to engage in fuzzy thinking I think I would think again.
 
Jonathan Edwards said:
I am more sanguine. I think the members of the committee will find themselves in the midst of scientifically robust policy development. Whether or not they engage is up to them but no wool pulling over eyes is going to occur. The list of members is not yet complete I think, but some frighteningly sensible people have been taken on. If I was intending to engage in fuzzy thinking I think I would think again.
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That is heartening. If the environment really is going to be such, that anyone seeking to push bad science in whatever form, will be exposed for what they are amongst peers who will not tolerate it, then who knows - they just might learn something useful.
 
Can I just clarify?
Bath made the statement about Dr Jo Daniels yesterday, but was this appointment announced earlier by Nice?
How many appointees have still to be announced? Last time I looked, it was three but I could be behind. Am unwell so more confused than usual.

ETA: I see Jo Daniels was listed as a member on page 3 of the list appended to post #1 of this thread. It has been confusing to have members’ names released in dribs and drabs- was there ever a purpose to this?
 
Jonathan Edwards said:
I am more sanguine. I think the members of the committee will find themselves in the midst of scientifically robust policy development. Whether or not they engage is up to them but no wool pulling over eyes is going to occur. The list of members is not yet complete I think, but some frighteningly sensible people have been taken on. If I was intending to engage in fuzzy thinking I think I would think again.
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Thank you for this reassurance. However i have a feeling that the deckchairs are currently being nailed down.

There seems to be a subtle realignment underway, for which the treatment may well be CBT.

I hope that i am wrong.
 
Jonathan Edwards said:
I think the members of the committee will find themselves in the midst of scientifically robust policy development. Whether or not they engage is up to them but no wool pulling over eyes is going to occur.
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I presume on the previous committee 10+ years ago, and in the NICE sub-groups assessing things in between, there were no people really in a position to argue forcefully against the serious flaws of these studies. That is not the case this time around. Also, I think the reputation of PACE and this research will continue to fall as the NICE committee meets over the next year or so.
 
Binkie4 said:
Can I just clarify?
Bath made the statement about Dr Jo Daniels yesterday, but was this appointment announced earlier by Nice?
How many appointees have still to be announced? Last time I looked, it was three but I could be behind. Am unwell so more confused than usual.

ETA: I see Jo Daniels was listed as a member on page 3 of the list appended to post #1 of this thread. It has been confusing to have members’ names released in dribs and drabs- was there ever a purpose to this?
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I believe I'm right in saying that Jo Daniels' appointment was made and announced by NICE quite some time ago, this looks like Bath catching up with the news. I've lost track though on how many more are left to be appointed.
 
Amw66 said:
Really?
Words fail me
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"We heard your concerns and *hard slap to the face with a trout* have 'listened' to them."

It's almost trolling at this point, responding with demands that go in one direction with exactly the wrong thing to do, like a waiter who returns the plate you sent back with the exact same thing, double portion.

I guess hubris isn't just part of the process, it is the process.
 
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