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NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

Discussion in '2020 UK NICE ME/CFS Guideline' started by Andy, Aug 30, 2019.

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Page 12 of 12
  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    9,588
    Location:
    UK
    AfME

    Our submission to the NICE call for evidence
    https://www.actionforme.org.uk/news...national-guideline-centres-call-for-evidence/

    MAGENTA, FITNET-NHS time to speak up(?)
     
    Sly Saint, Oct 25, 2019
    #221
    Snow Leopard, Sean, TiredSam and 1 other person like this.
  2. Amw66

    Amw66 Senior Member (Voting Rights)

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    6,333
    Amw66, Oct 25, 2019
    #222
    Sean likes this.
  3. Amw66

    Amw66 Senior Member (Voting Rights)

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    Amw66, Dec 19, 2019
    #223
    ukxmrv likes this.
  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    13,512
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    London, UK
    Is James Coyne suggesting that NICE has been assessed using a US system? It looks more as if he suggests it could be. I am sceptical. The US scorecard looks like the same formulaic sort of system that NICE uses. It is fine in theory but as soon as you get real people in solved everything slides.

    I am not clear what such a guideline achieve in the US since it seems that all sorts of unproven treatments are used in the US with insurance cover that would not be available in the UK. The IOM removed recommendation of GET but the rationale was pretty flimsy. The real problems with the poor quality research do not seem to have been identified.
     
    Jonathan Edwards, Dec 19, 2019
    #224
    rogerblack, TrixieStix, ukxmrv and 1 other person like this.
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