NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

AfME

Our submission to the NICE call for evidence

https://www.actionforme.org.uk/news...national-guideline-centres-call-for-evidence/

MAGENTA, FITNET-NHS time to speak up(?)

 

COI

 

https://twitter.com/user/status/1207396549703155714

 

Is James Coyne suggesting that NICE has been assessed using a US system? It looks more as if he suggests it could be. I am sceptical. The US scorecard looks like the same formulaic sort of system that NICE uses. It is fine in theory but as soon as you get real people in solved everything slides.

I am not clear what such a guideline achieve in the US since it seems that all sorts of unproven treatments are used in the US with insurance cover that would not be available in the UK. The IOM removed recommendation of GET but the rationale was pretty flimsy. The real problems with the poor quality research do not seem to have been identified.