V.R.T.
Senior Member (Voting Rights)
What is currently the best way for people in the UK to donate? Is @Joan Crawford's fundraiser still active? Or should i direct them to the English language ME fund page?
Norwegian Fluge & Mella daratumumab Haukeland trial 'ResetME' now accepting international donations
- Thread starter Sasha
- Start date
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- daratumumab fluge mella resetme
Liie
Senior Member (Voting Rights)
Now the donations page seems to work again.
Joan Crawford
Senior Member (Voting Rights)
I've completed my fundraiser @V.R.T.
Kalliope
Senior Member (Voting Rights)
The Norwegian ME Association's fundraiser ME-fondet has donated 4 million NOK (296 161 GBP - 397 504 USD) to the Daratumumab study. That's 8 million NOK in total from the fundraiser to the study thanks to the effort from many!
In a news update from the ME Association today, it's estimated that 3 500 000 NOK (259 141 GBP - 347 816 USD) is still lacking, and the ME-fondet will work to get the study fully funded within the year.
Half of the participants have been recruited and half of the recruited have received their first infusion with Daratumumab or placebo.
The research team is also running a pilot study on severe ME-pasients and have expanded it with five more participants.
www.me-foreningen.no
In a news update from the ME Association today, it's estimated that 3 500 000 NOK (259 141 GBP - 347 816 USD) is still lacking, and the ME-fondet will work to get the study fully funded within the year.
Half of the participants have been recruited and half of the recruited have received their first infusion with Daratumumab or placebo.
The research team is also running a pilot study on severe ME-pasients and have expanded it with five more participants.
ME-fondet gir 4 nye millioner til ResetME
ME-fondet har overrakt 4 nye millioner til Haukeland, studien er i rute og pilotstudien utvides med 5 pasienter med alvorlig ME.
www.me-foreningen.no
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Kalliope
Senior Member (Voting Rights)
Influencer Sarah Emilie with the clothes fashion brand Careless has donated 1.7 million NOK to the ResetME study. 
1.7 million NOK is 171 768 USD and 130 568 GBP
Announcement on Facebook (in Norwegian)
ETA: They say it's to ME research at Haukeland University Hospital and talk about having received updates from the research, so I assume they mean the Daratumumab/ResetME study.
1.7 million NOK is 171 768 USD and 130 568 GBP
Announcement on Facebook (in Norwegian)
ETA: They say it's to ME research at Haukeland University Hospital and talk about having received updates from the research, so I assume they mean the Daratumumab/ResetME study.
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SugarSquared
Senior Member (Voting Rights)
Influencer Sarah Emilie with the clothes fashion brand Careless has donated 1.7 million NOK to the ResetME study.
1.7 million NOK is 171 768 USD and 130 568 GBP
Announcement on Facebook (in Norwegian)
ETA: They say it's to ME research at Haukeland University Hospital and talk about having received updates from the research, so I assume they mean the Daratumumab/ResetME study.
Fingers crossed that means it’s for the daratumumab study!
Does this person have a personal connection to ME/CFS? I’m curious as to why she would make a donation.
Kalliope
Senior Member (Voting Rights)
I think she has had ME, but don't know the details. She has given to the Haukeland ME research team for several years in a row, but I think this is the largest donation from her so far.
Utsikt
Senior Member (Voting Rights)
She had ME/CFS before, was diagnosed at 14. She says she just got lucky to recover after many years. She donates 10 % of the profits from her company, Careless, to ME/CFS research.
josepdelafuente
Senior Member (Voting Rights)
Oh wow, that's really great! what a star.
That must be around half of what was still remaining for them to fundraise back in January!
Robert 1973
Senior Member (Voting Rights)
What a great role model for people who have recovered. I’d never heard of her before but thank you Sarah Emilie if you’re reading this.
