(Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

Yes it is, Jolene Daniels

 

Looks like this study is still trying to recruit participants.
https://twitter.com/user/status/1091470661074046976

 

"What will it involve?
Filling in questionnaires on fatigue and thinking styles eg worry"

I need to think about what my 'thinking style' is, is that something I should worry about?

 

The study is truly absurd and patronising drivel. I thought it had quietly dropped out of existence due to a combination of derision and lack of interest, so it's rather surprising to see that they're still trying to recruit. Still no/not enough takers, since 8/9/17? Gee, I wonder why that is.

 

It says

Clear conflation of anxiety and ME. Some very unhelpful, false illness beliefs right there.

Subjective questionnaires.

Really, what could possibly go wrong?

 

They won't get their shopping back home?

 

Back in April a PwME emailed Bath to express concerns about the study. This was the response.
https://twitter.com/user/status/989843735226863617

 

And yet they say-

Either someone doesn't know what they're talking about or there's some cognitive dissonance going on here - and I'm not referring to the patients.

 

Riiight, of course they don't.

 

We do not believe ME is a psychological condition. Now let's get back to studying your thoughts and feelings so we can improve the CBT with which we want to cure you.

 

did they ever complete this? publish the results?

 

As we know from long experience -- thoughtful words have never translated into thoughtful actions with this group. The thoughtfulness is a veneer even if they sound sincere as I expect they no doubt believe their own words and mean what they say. But their actions always speak altogether differently.

The hardest thing for me is not the BPS people it's the PwME who keep going down the rabbit hole believing BPS propaganda expecting something new.

It's hard to say it and no doubt not politic. And the worst part is that the need to be cynical about this means trust has been broken and that has lasting and devastating consequences beyond the personal.