(Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

[MEMarge]

"I look forward to the opportunity to contribute to scientifically-robust policy development in the field, particularly from a psychologically informed perspective."

Is that an oxymoron.

Yes it is, Jolene Daniels

 

[Andy]

Looks like this study is still trying to recruit participants.

 

[Sly Saint]

"What will it involve?
Filling in questionnaires on fatigue and thinking styles eg worry"

I need to think about what my 'thinking style' is, is that something I should worry about?

 

[EzzieD]

"What will it involve?
Filling in questionnaires on fatigue and thinking styles eg worry"

I need to think about what my 'thinking style' is, is that something I should worry about?

The study is truly absurd and patronising drivel. I thought it had quietly dropped out of existence due to a combination of derision and lack of interest, so it's rather surprising to see that they're still trying to recruit. Still no/not enough takers, since 8/9/17? Gee, I wonder why that is.

 

[Adrian]

Looks like this study is still trying to recruit participants.

Putting the IRAS ref into google gives an uninformative page
https://www.hra.nhs.uk/planning-and...ical-exertion-in-chronic-fatigue-syndrome-me/

 

[Invisible Woman]

Putting the IRAS ref into google gives an uninformative page
https://www.hra.nhs.uk/planning-and...ical-exertion-in-chronic-fatigue-syndrome-me/

It says

It aims to distinguish between strategies that may be unhelpful, and more adaptive coping strategies which reduce rather than maintain anxiety.

Clear conflation of anxiety and ME. Some very unhelpful, false illness beliefs right there.

Participants will complete questionnaires before and after to investigate the intention and effects of behaviours.

Subjective questionnaires.

Really, what could possibly go wrong?

 

[Andy]

Really, what could possibly go wrong?

They won't get their shopping back home?

 

[wigglethemouse]

Back in April a PwME emailed Bath to express concerns about the study. This was the response.

 

[Invisible Woman]

And yet they say-

It aims to distinguish between strategies that may be unhelpful, and more adaptive coping strategies which reduce rather than maintain anxiety.

Either someone doesn't know what they're talking about or there's some cognitive dissonance going on here - and I'm not referring to the patients.

 

[Andy]

Back in April a PwME emailed Bath to express concerns about the study. This was the response.

Riiight, of course they don't.

 

[Hoopoe]

We do not believe ME is a psychological condition. Now let's get back to studying your thoughts and feelings so we can improve the CBT with which we want to cure you.

 

[Sly Saint]

did they ever complete this? publish the results?

 

[Snowdrop]

As we know from long experience -- thoughtful words have never translated into thoughtful actions with this group. The thoughtfulness is a veneer even if they sound sincere as I expect they no doubt believe their own words and mean what they say. But their actions always speak altogether differently.

The hardest thing for me is not the BPS people it's the PwME who keep going down the rabbit hole believing BPS propaganda expecting something new.

It's hard to say it and no doubt not politic. And the worst part is that the need to be cynical about this means trust has been broken and that has lasting and devastating consequences beyond the personal.