(Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

Am I correct in thinking that “they” are researching false illness beliefs and catastrophising (yet again)?

Why are they SO stubborn and tenacious with this belief? It’s money wasted time after time in order to ... what? It’s already absolutely clear that this patient group desperately want to live life outside of the same four walls.

If I could go shopping and carry shopping bags I’d be delighted, thrilled to bits, excited and hopeful that I could do it again and again.
 
The problem with these studies is that they are based on a convenience sample, and given that most people know they're talking to a psychologist etc, it biases towards people who may believe in the hypothesis and may explicitly or implicitly bias their responses to favor the hypothesis.

Conversely, these studies could in principle be captured by a group who has ulterior motives and wants to skew the hypothesis into the opposite direction. *cough*
Carrying a bag of shopping? How hard can it be? ;)

Tip for anyone answering questionnaires at multiple time periods - take a picture of your previous answers on your phone for comparison and then use these as a basis for answering those questions.
 
andypants said:
I find it fascinating that they think heart rate monitoring could be useful, but apparently only during face-to-face therapy sessions.
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Probably so they can say that high heart rate indicates undue worry and concern about the task. It won't be used to indicate that getting there and doing the activity are more difficult for ME folk, OH NO, it will be used to say we get stressed by being asked to exert ourselves, and THAT is our problem!!
 
"carrying a shopping bag. This will be recorded and you will be asked to watch this back and answer some questions about it"
:bag:


eta: just wanted to say thank-you to Esther Crawley........I have been laughing hysterically for several minutes. Just the thought of it has indeed 'lifted my mood'.

eta: it's not her but no doubt she was the inspiration
 
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I wouldn't mind volunteering for this as long as they allowed me to film them filming me and when it was over we could sit down and watch my film and they could describe their thoughts and feelings and emotions on having wasted their careers.
 
David Tuller said:
Ok, then! Personally, I generally dislike shopping. So carrying a shopping bag around, and then having to watch a video of myself carrying a shopping bag around, and then having to answer questions about how I feel while watching the video of me carrying a shopping bag around…well, let’s just say it doesn’t sound like my idea of a good time. I’d rather be clipping my toenails or something.
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@dave30th, you're such a party pooper :rolleyes:
 
I have to wonder what the hypothesis they are testing is. Is this required to be stated in a clinical trial?
I'll be surprised if it makes any sense as we all would but i would like to know.

Jonathan Edwards said:
Maybe they should do atrial of psychologists carrying bags, as a positive control for barmy thinking.
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This reminds me of a change.org petition a while back (paraphrasing) its common to name airports after former Canadian Prime Ministers but unusual to name a former Prime Minister after an airport. He deserves this unique honour... :rofl:

John Mac said:
I wouldn't mind volunteering for this as long as they allowed me to film them filming me and when it was over we could sit down and watch my film and they could describe their thoughts and feelings and emotions on having wasted their careers.
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I am betting you would hear loads of alternative facts about how they are not, replete with photographic evidence (i mean justification arguments)
 
Is the prospective new treatment Graded Shopping Therapy? You start off on the first aisle at Waitrose -I don't suppose they shop at Tesco -and buy the end of the course they'll have you running up and down all of them and making it through check out. I can almost remember what it was like to do such things.
 
If only Chris Ponting were a member of this forum. It would be interesting to get his take on the relevance of this study.

They simply don' t get PEM do they?
Heart rate monitors for the following 3 days may be more illuminating ...
 
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