OECD-EUPHA Policy Dialogue on Long COVID Patient and Caregiver Survey

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Not a lot of details about it, but the European Public Health Association is running a survey of Long Covid. It's a recruitment phase, not a study results. There is a forum for recruitment in ME/CFS studies but not LC, although it definitely crosses over from the definition they use.

Few details here: https://db.eupha.org/repository/EUPHA_newsletter/2026/Long COVID classification.pdf
Survey URL: https://forms.cloud.microsoft/pages...dIWlpRV1ZGOVZPQ1E1TVIxUUZZRy4u&route=shorturl

About this survey This survey is organised by EUPHA (European Public Health Association) and the OECD. It is part of a Policy Dialogue on Long COVID. This work is done within the European Commission's Open Stakeholder Group on Long COVID (DG SANTE).

Who can take part?

• People living with Long COVID
• Caregivers
• Parents or guardians of children with Long COVID

How long does it take? About 15 minutes. You can skip any question you do not want to answer. What happens with your answers? Your answers will help write a policy paper by OECD and EUPHA. Results will be reported as a group. No answer will be linked to you personally. Is participation voluntary? Yes. You can stop at any time. You do not need to give a reason. Stopping will have no consequences.