Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

Discussion in 'Long Covid news' started by lycaena, May 5, 2020.

  1. MrMagoo

    MrMagoo Senior Member (Voting Rights)

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    Well Charles Shepherd was giving him advice. Must be nice to be having the VIP treatment, only to dismiss it a few months later.
     
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  2. Ash

    Ash Senior Member (Voting Rights)

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    I see. So put that down to MEA leading people with ME a stray not for the first time.

    If CS wanted to give PG medical advice in a personal capacity, then that’s his own, as it happens unfortunate, decision to make. But he didn’t have to profile the guy for other people with ME to read about and take as an endorsement, in either direction.
     
    Last edited: Oct 30, 2024
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  3. Hutan

    Hutan Moderator Staff Member

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    I think it was fine for Charles Shepherd to provide advice to Paul Garner at that time, and also for the MEA to profile him. Garner has roles that would have made him a very useful ally, and clearly Garner was quite open to providing material.

    Perhaps someone who knows Garner well might have guessed that he would later say completely the opposite of what he said in that piece, but I don't think it was at all obvious and I don't blame the MEA for publishing the article. I think they had to take the risk of allyship with Garner. In fact, the piece is useful, as it helps us understand what was going on for Garner.

    It gave us evidence of how Garner thought of his illness as an extension of covid-19 and more dangerous than ME/CFS. Perhaps that partly his explains his mission now, to reassure.

    It told us that Paul Garner has a sister with ME/CFS. All I can say about that is that she has my sympathy.
     
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  4. Adam pwme

    Adam pwme Senior Member (Voting Rights)

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  5. Lou B Lou

    Lou B Lou Senior Member (Voting Rights)

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  6. Joan Crawford

    Joan Crawford Senior Member (Voting Rights)

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    Great summary @Hutan Thanks

    PG comes across confused and talking outside of things he understands. Nocebo is 100% PDW.

    Good to hear lots of dissent and push back from across the other speakers.

    It doesn't help credibility if the doctors are talking about unproven evidence as if some of these things are fact or treatments too.

    I wish there would be less overreach from the available evidence - from PG (from psychobabble perspective) and the other doctors (presenting things as facts where there are none).

    How is it so hard to say, "We dunno".
     
  7. Mij

    Mij Senior Member (Voting Rights)

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    He's very selective in what he chooses to believe. He wrote this on one of his numerous blogs:

    "I have learnt so much. I became well by listening to someone who had recovered from ME/CFS" "You believe you can recover? Then recover you will"

    Then threw the unrecovered under the bus and complained about 'unsolicited emails"
     
  8. EzzieD

    EzzieD Senior Member (Voting Rights)

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    Excellent summary, @Hutan

    Between that and the clip posted by @Adam pwme a few posts up, where Garner is again introduced as a 'COVID expert', I do wonder who told these news outlets that Garner is a 'COVID expert', when he is so clearly out of his depth. Am really pleased that on the Nicky Campbell show, they allowed the other doctors and therapists on the show to speak up to say his views are nonsense and unscientific. Kudos to them.
     
  9. rvallee

    rvallee Senior Member (Voting Rights)

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    Given the context of the discussion and clipping only some parts of Garner's, this is truly impressive propaganda. It rarely gets any more in-your-face even in dictatorships with regime-friendly media owned by friends of the dictator. This is the opposite of serious news media.
     
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  10. Ash

    Ash Senior Member (Voting Rights)

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    Yeah. I never know if it’s that people have really bought into there being already proven biological mechanisms or validated treatments having been convinced by the research available so far, or if it’s wish fulfilment, where you want so much for us to have already arrived at a place of reliable biomedical treatments?
    Like how so many people are committed to pretending that we aren’t living through a pandemic because vaccines solved it for us or because it never existed in the first place.

    Also language can be slippery. People with long COVID require medical treatment. You can provide people with long Covid with medical treatment. As of always, ever since Covid. Whereas you can’t yet treat long Covid as the condition itself medically.

    It’s an absolute catastrophe that the two options on the table are self experimenting whilst probably not in the best condition for scrutinising one’s options, what with the cognitive disadvantages and or not being medically trained, or else putting yourself into the ‘Don’t worry about it, it’s nothing you’re imagining it, get back to work.’ psych program.



    Edit:removed irrelevant paragraphs. + added a couple of essential words that were missing.
     
    Last edited: Oct 30, 2024
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  11. rvallee

    rvallee Senior Member (Voting Rights)

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    I assume he did. His credentials are good enough to sound convincing to someone who doesn't know better. Which all really cheapens out the value of those credentials, makes them in fact pretty much nil, but that's a problem for later. Just like the problem with all the lying about immunity debt and hybrid immunity and so on. Effective short-term, at the expense of long-term loss of credibility.
     
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  12. EndME

    EndME Senior Member (Voting Rights)

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    Is he trying to tell us that his sister isn't a good listener?
     
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  13. Mij

    Mij Senior Member (Voting Rights)

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    This was most likely the the reason he was given 2 interviews on CNN during the time he had Covid. Included high drama too.
     
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  14. MrMagoo

    MrMagoo Senior Member (Voting Rights)

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    On the one hand, it’s good to have him on a panel of experts as it exposes him. Luckily the Beeb have taken the “balance of views” thing in the right direction here.

    On the other hand, he has certainly made a lot of media appearances which gives us a fascinating history to look at - members of the public might remember him, he was on the likes of GMB during lockdown.
    The “public” are much more aware that “ME and LC are real” (as in, not just psychological) thanks to media coverage particularly of Maeve Boothby-O’Neill’s inquest, and because they or someone they know got ill. So some of the public will be seeing him pop up again and think “what’s he on about?” I don’t think it’s just us who think he’s talking nonsense.

    So altogether, let him crack on and expose his views, I think he’s shouting into the void. Being silenced isn’t the same thing as nobody being interested in what you say. At best he has “internet haterz” as do any people who appear on western mainstream media.
     
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  15. Mij

    Mij Senior Member (Voting Rights)

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    $100 says he won't be invited on CNN again.
     
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  16. MrMagoo

    MrMagoo Senior Member (Voting Rights)

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    I’d like to think he won’t be back on Good Morning Britain either. Can’t see Kate Garraway having a chat with him, although I guess Derek Draper died from Covid, rather than he had LC.
     
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  17. rvallee

    rvallee Senior Member (Voting Rights)

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    [​IMG]
     
  18. Sean

    Sean Moderator Staff Member

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    Exactly. One thing that ME/CFS, and now LC, have exposed about medicine – at least at the clinical level – is that it has a terrible cultural prohibition on saying 'we don't know'. They would rather give an utterly ludicrous false answer than no answer at all. Which is about as inviting of disaster as it get.

    I think it starts from day one of medical school, were not knowing the answer is all too often punished in a hard and humiliating way. Maybe things have improved in recent years, but clearly nowhere near enough yet to fix the basic problem.

    Look, I get it that doctors cannot afford to be too wrong, and that there is basic genuine knowledge base, and lots of it, they absolutely have to master to a very high degree. But when it gets beyond that, as it often does in the coalface practice of medicine, then the whole show just falls apart, and they really do start getting it terribly wrong.

    "It ain't what you don't know that gets you into trouble. It's what you know for sure that just ain't so."

    Attributed to various sources.
     
  19. MrMagoo

    MrMagoo Senior Member (Voting Rights)

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    Why was he introduced as a “Covid expert” (whatever that is) and not as Emeritus Professor of Epidemiology?
     
  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    when PG or any of the BPS lot start going into this or 'dualism' etc people should simply call them out and say, so you're not saying that LC or ME are psychosomatico_O?

    One look at the group he belongs to, where they are all 'experts in psychosomatic medicine' (but with the exception of Garner) , not to mention their ties with the journal of psychosomatic medicine etc etc would pretty much suggest otherwise.
     

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