Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

"I fulfilled the Canadian Consensus Criteria for CFS/ME. I was referred by my doctor to a CFS/ME specialist. The ME community sent me unsolicited emails about mast cell deactivation, biological causes of my illness, and told me to rest. Indeed, one person told me that this illness was actually “short haul”-and to prepare myself for an illness that might last the rest of my life."

"I have learnt so much. I became well by listening to someone who had recovered from ME/CFS. I knew the virus had gone.":emoji_thinking:

PG

It is a bit disingenuous to say the ‘ME community sent me unsolicited emails’. I understand he very publicly conducted his Covid and post Covid saga on line and invited information/support from ‘the ME community’.

At the time, I felt people were getting over excited by the idea of a medical professor who wanted to know more about the overlap between ME and Long Covid and who seemed to understand the concept of PEM. However he was definitely engaging with the ME/CFS community until his road to Damascus experience via the Norwegian phone call, when he seem to go from welcoming the attention from the ME/CFS community to denigrating those who fail to recover and actively engaging with the BPS coterie who assert anyone can recover if they just want to enough and believe enough in the power of exercise.
 
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