Heyho, short introduction from my side, im from germany ( english is not my native language so please overlook possible grammar mistakes I got CFS after an infection with the legionnaires disease in 2014. I tried a lot of different therapies by now (some examples: Rituximab, Rapamun) and im now short before a plasma exchange treatment bc im still a big believer this disease is an autoimmune problem aka autoantibodies vs adrenergic/muscarinergic receptors and i hope i can at least see a short term relief in symptoms when they are gone for some time. My question, did anyone else here try it before ? Did it help you and if yes for how long? Thanks in advance
Yes, I have had double exchange plasmapheresis in Thailand. No, it did not help. Yes, it would not hurt.
Thanks a lot for the answer. Dont know what to expect but will definitely give it a try. I was tested positiv for ß2, M2 and nociceptin receptor autoantibodies. So lets see how life is without them for a while.
I did have one cycle of 7 exchanges over 10 days. Not gonna lie it was pretty exhausting. Sadly it did absolutely nothing for me.
Young plasma might help....maybe https://www.s4me.info/threads/rever...ic-age-with-a-single-clock.15091/#post-259902 Somebody just posted a skeptical comment about the study on the preprint website
@butter. 4mg loading dose followed by 2mg for about a month. Did nothing. Im bedridden most time of the day.
