News about Long Covid including its relationship to ME/CFS 2020 to 2021

Note that key phrase "used to manage"

 

It becomes even more annoying when she says

"this is not a straightforward post-viral condition, and requires a different approach".

 

This is true of the US health care system. It is also true of every health care system, because the flaws are in medicine itself. Countries that are growing adoption of the MUS model, like Norway and Denmark, will likely fare even worse precisely because of this. This isn't an issue of how the health care system is organized, the very expertise responsible for the issue has completely failed at understanding the issue. Politicians cannot build a health care system adapted to real needs when the very profession advising on those needs has never attempted to understand them.

Until this is recognized not much progress will be made.

 

So did we all. We even said so for decades. We were attacked for it, demonized. Decades of failure crashing all at once.

Now take a look at the NICE LC guidelines. No PEM. No pacing. Door is fully open for GET and CBT. Not even a reference to the ME guidelines that fix those, it's "out of scope". And those changes are strongly opposed by political forces. It would be great to make this physician aware of those things because the very things he wants to happen are happening, just clearly without his awareness.

 

https://twitter.com/user/status/1343214597415854081

 

This article, quite frankly, is embarrassing to the author and the medical profession (if they are actually capable of embarrassment).

This demonstrates is that doctors are so poorly educated about ME/CFS that they can't recognise it even when they have it themselves.

Clearly she has never spoken with (or listened to) a patient with ME/CFS.

The level of ignorance here is breathtaking. I'm speechless.

 

As an infectious disease doc I imagine she has seen PVFS and ME/CFS patients in her career. Based on her statements here about exercise, she probably fobbed them off with terrible advice and now that she has PEM herself she still doesn’t grasp what’s going on, she is still dismissing others. Disturbing.

 

Indeed, infectious disease physicians see people with ME/CFS very regularly. Totally underwhelming.

 

https://twitter.com/user/status/1343551099815534593

 

It's like the pathophysiology of ME was just some midcentury campfire story.

 

It is a well known fact, at least since 1959, that long term sequelae of infectious diseases are the preserve of psychiatrists. Are they not all caused, or perpetuated by, prior psychological vulnerability?

EDIT typo

 

From what I gather, if the victim has an MD after their name, then their postviral syndrome is real and needs urgent NIH funding. If the victim is just some pleb, then that person has a psychosomatic issue and needs a gym membership.

 

https://twitter.com/user/status/1343860581405757442

 

Explanations for ‘long Covid’ remain elusive. For now, believing patients and treating symptoms is the best doctors can do

https://www.statnews.com/2020/12/29...and-treating-symptoms-is-best-doctors-can-do/

 

I wonder how long it will be before the CDC puts that letter back up on its noticeboard.

 

https://twitter.com/user/status/1343615389247426560

 

https://twitter.com/user/status/1343511695193501697

 

https://twitter.com/user/status/1343827565811695617