News about Long Covid including its relationship to ME/CFS 2020 to 2021

A few months after I became ill, my 85 yo mother divulged a piece of dark family history. This was known only to her, divulged by her grandmother as she was the oldest (and only female) grandchild.

My maternal-paternal great-grandfather died in the early 1930s, which would have been at my age. He had been a fit and healthy coal miner, but became very disabled in his last years, and was given the diagnosis of "neurasthenia".

The family wheeled him around in a wheelchair. My great-grandmother described how he hated the dark and asked for a candle at night, but this was too expensive. Despite being in a wheelchair, he was clearly not paralysed and one day (through I can only imagine enormous strength of will) wheeled himself through the town to the lakeside and folded his clothes to lie neatly beside the wheelchair...

I expect he had the sort of visual disturbances that caused distressing hallucinations in darkness. My sister and I wanted to go back in time and hug the poor dear man, left in that terrible darkness.

My mother had been understandably reluctant to tell me this story. However, it's helpful to know the genetic predisposition must be there, so at the very least other family members can know to be careful with recuperation from viral illnesses.

 

https://twitter.com/user/status/1449475776341020673

 

This is what is said in the video at 34.40. Too bad he hasn't familiarised himself better with ME before talking about it.

- I also, I've had some Long Covid symptoms. I had the illness in June. And I think to dismiss this as psychological or chronic fatigue syndrome...it's similar, but there are many reasons why there is a biological, I'm sure Danny and Steve could speak for half an hour about the various possible mechanisms for this, and I think we should not ignore this.

 

A milestone - I've been here three months and posted 100 times. For my 101st post, here is my very first use of this all too popular emoji -

 

I've been here a lot longer and I use this one now from banging my head

 

https://twitter.com/user/status/1449730799620743172

https://twitter.com/user/status/1449732354952597504

 

Long COVID is ruining lives, but it also presents Australia with an opportunity
https://www.abc.net.au/news/2021-10...ty-to-support-chronic-illness-mecfs/100506530

Believe it or not, we've seen this before
Post-viral syndromes have always been prevalent but are consistently overlooked and under-researched.

Some of the post-viral symptoms of long COVID are strikingly similar to Myalgic Encephalomyelitis or Chronic Fatigue Syndrome, as experts like White House chief medical advisor Dr Anthony Fauci have pointed out.
...
Like long COVID, ME/CFS is an umbrella term for what is likely a number of different causes and effects.

Up to 250,000 Australians are estimated to have ME/CFS, which often emerges following a viral infection such as influenza, glandular fever, ross river fever, dengue fever, epstein barr, SARS or ebola.​

However, this is hopium:

After years of feeling overlooked, ME/CFS groups are optimistic the new focus on long COVID could unearth some answers for their conditions, too.​

I am not at all hopeful, seeing medicine fail all over again, repeating the same mistakes and being obviously hostile to the idea. There is a rare opportunity, but there are huge efforts trying to stop if from happening, with very little in the way of help.

 

Although there is no official program in Canada, Cheung is basically the de facto authority on Long Covid.

https://twitter.com/user/status/1449900041276117002

 

?

The debilitating effects of long Covid have just begun to hit economies
A study of German footballers revealed they still weren’t fighting fit six months after recovering from infection

https://www.theguardian.com/comment...f-long-covid-have-just-begun-to-hit-economies

 

(Auto-translated)
Long Covid Coach
https://tvthek.orf.at/profile/Mayrs...14109306/Berufsbild-Long-Covid-Coach/15016489

There are now tens of thousands of people in Austria who suffer for months after being infected by the coronavirus. Professional groups such as psycho- and physiotherapists, masseurs or fitness trainers can now be trained to become long-covid coaches in order to be able to better help people with the disease.​

 

The WHO has released a document outlining a formal definition for long COVID, which it now calls “post COVID-19 condition.”

See this thread:
https://www.s4me.info/threads/who-a...vid-19-condition-by-a-delphi-consensus.22688/

 

https://twitter.com/user/status/1450465063056420874

 

We did! Many others did. And no one paid attention to it. A few months into it it was annoying but 18+ months into it it's absurd that the recent past is so thoroughly ignored it may as well not have happened.

https://twitter.com/user/status/1451204563197829132

 

Shame it didn´t take a global pandemic, but the mishandling of a global pandemic for over 2 years to get some recognition for ME/CFS. My heart goes out to everyone who has had their lives ruined by this clown fiesta. Unbelievable.

 

Journalist and production assistant at CNN.

https://twitter.com/user/status/1451258478446530560

https://twitter.com/user/status/1451258481705553930

 

Slightly off-topic, but there's really no hope when this is the representation of a governing political party in a major world economy. (Not that it hasn't been on display in other domains over the last five years.)
https://twitter.com/user/status/1451142195986280450

 

I'm not going to defend this post, but I just thought it might interest someone.

Title : Post-COVID Persistent Symptoms By Dr Eric Berg (who is a chiropractor not a doctor of medicine)

https://www.youtube.com/watch?v=x_adWYnBnSo

 

Don't give Covid-19 long-haulers the silent treatment - STAT

https://www.statnews.com/2021/10/22/dont-give-covid-19-long-haulers-the-silent-treatment/