"Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits. "You’re constantly coming up against people who just don’t get it, people see her out and about and even though she’s pale, she’s able to chat and play a bit, so it is brushed off." https://www.rsvplive.ie/life/dublin-mum-shares-warning-signs-22650038