RSVP Live - "Dublin mum shares warning signs of ME in children after daughter's diagnosis aged just 7"

Discussion in 'General ME/CFS news' started by Kalliope, Sep 13, 2020.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,365
    Location:
    Norway
    "Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits.

    "You’re constantly coming up against people who just don’t get it, people see her out and about and even though she’s pale, she’s able to chat and play a bit, so it is brushed off."


    https://www.rsvplive.ie/life/dublin-mum-shares-warning-signs-22650038
     

Share This Page