The ME Patient Foundation

Maybe not directly relevant but my experience organising Millions Missing locally gave me an insight into the organising and bureaucracy involved once you start to get beyond informal advocacy. And that was only for a one day event. I found the demands cognitively and physically were equivalent to when I was working in paid employment. And it’s much more challenging dealing with bureaucracy than dealing with colleagues.
 
Best wishes to everyone trying to improve things. I'm sure a lot of people are doing all sorts of work behind the scenes that doesn't really get the appreciation it deserves. Sorry this didn't work out for those involved.
 
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I understand from Claudia that the resolution process with the Charity Commission has been completed.

There is nothing that I could see on the Charity Commission site's listing for this charity that it has been wound up and as far as I am aware, Emma and her husband (a co-trustee/director) have issued no further statements.

This fundraising page also remains online: https://www.totalgiving.co.uk/charity/the-me-patient-foundation
 
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