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The ME Show

Discussion in 'General ME/CFS news' started by Gary Burgess, Apr 21, 2018.

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Page 8 of 9
  1. TiredSam

    TiredSam Committee Member

    Messages:
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    I've only just got round to listening to the first 3 episodes - absolutely excellent, I'm very much looking forward to hearing the rest.
     
    TiredSam, Jun 23, 2018
    #141
    Esther12, Skycloud, NelliePledge and 9 others like this.
  2. Andy

    Andy Committee Member

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    Episode 8 is now available.
    http://www.meassociation.org.uk/podcast/
     
    Andy, Jun 25, 2018
    #142
    It's M.E. Linda, andypants, Inara and 10 others like this.
  3. Amw66

    Amw66 Senior Member (Voting Rights)

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    Thank you Gary & Greg
    This is a completely different world that few can comprehend - thanks for shining a wee bit of light.
     
    Amw66, Jun 25, 2018
    #143
    Joh, It's M.E. Linda, andypants and 11 others like this.
  4. Gary Burgess

    Gary Burgess Established Member (Voting Rights)

    Messages:
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    Location:
    Jersey
    Hi all

    Episode 8 of The ME Show is now live. For me, a really powerful listen and an honest insight into life as a carer of somebody with severe ME.

    I speak to Greg Crowhurst whose wife Linda has been unwell for more than 25 years.

    Take a listen here: www.meassociation.org.uk/podcast

    ❤️
     
    Gary Burgess, Jun 25, 2018
    #144
    Comet, ArtStu, Binkie4 and 18 others like this.
  5. Nellie

    Nellie Senior Member (Voting Rights)

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    Location:
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    That's really powerful. Such brave people. Thank you.
     
    Nellie, Jun 25, 2018
    #145
    Joh, Binkie4, It's M.E. Linda and 11 others like this.
  6. NelliePledge

    NelliePledge Moderator Staff Member

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    this series is great and the interview with Greg was very moving, thank you very much @Gary Burgess. I hope you are doing ok
     
    NelliePledge, Jun 25, 2018
    #146
    Joh, Binkie4, It's M.E. Linda and 11 others like this.
  7. Trish

    Trish Moderator Staff Member

    Messages:
    55,414
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    Thank you @Gary Burgess and Greg and Linda Crowhurst. A very powerful and moving interview. My best wishes to Greg and Linda - they have had a very hard road to travel and their love for each other shines through.

    Greg mentioned getting some treatment which made Linda's ME much worse. I am greatly saddened by that, but, sadly, not surprised - I assume it involved increasing activity.
     
    Trish, Jun 25, 2018
    #147
    Rick Sanchez, Joh, Binkie4 and 12 others like this.
  8. TiredSam

    TiredSam Committee Member

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    10,557
    Location:
    Germany
    Finally managed to catch up and listen to episode 6 today. @Trish you were already a big hero of mine, but that interview was cape-worthy. Everything you said was bang on the money. Not quite as posh as I expected, but still quite the lady.

    I do my listening in the car, and I was so engrossed listening today that my driving brain switched to auto-pilot and I ended up driving to the wrong customer and being 10 minutes late for the one I should have been going to. So of course I just walked in and said "sorry I'm late, I was so engrossed listening to a friend of mine being interviewed on the radio that I took a wrong turn".

    Favourite bit was @Trish's splendid summary of the PACE trial in one word:

    https://www.youtube.com/watch?v=h3hcpttINNo




    Second favourite bit was the appreciation of at least having had a life before ME hit, which is exactly how I feel.
     
    TiredSam, Jun 29, 2018
    #148
    Keela Too, Gary Burgess, Inara and 11 others like this.
  9. Trish

    Trish Moderator Staff Member

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    Aw gee, thanks Superman.
     
    Trish, Jun 29, 2018
    #149
    ArtStu, Gary Burgess, Hutan and 4 others like this.
  10. Andy

    Andy Committee Member

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    http://www.meassociation.org.uk/podcast/
     
    Andy, Jul 2, 2018
    #150
    Esther12, It's M.E. Linda, Inara and 5 others like this.
  11. Trish

    Trish Moderator Staff Member

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    Location:
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    Another good program. I hope the local group discussed goes from strength to strength. My limited experience of joining a local group some years ago was not so good. I guess it varies enormously with the individuals concerned.
     
    Trish, Jul 2, 2018
    #151
    It's M.E. Linda, Inara, Indigophoton and 5 others like this.
  12. Gary Burgess

    Gary Burgess Established Member (Voting Rights)

    Messages:
    52
    Location:
    Jersey
    Hello all

    We’re up to episode 9 of The ME Show, out today.

    I speak to Chantelle who set up a friendship group online in Gloucestershire. The group now also holds coffee mornings for those who are able to also physically attend. It’s brough people together and helped at least one member with her political campaigning for better ME awareness and understanding.

    Listen for free here: www.meassociation.org.uk/podcast
     
    Gary Burgess, Jul 2, 2018
    #152
    Comet, Esther12, MSEsperanza and 10 others like this.
  13. Trish

    Trish Moderator Staff Member

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    Location:
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    Thanks @Gary Burgess. It's good to hear that a local group is functioning so well.

    Such groups are very dependent on individuals. I haven't had a good experience of my local group in the past (10 and more years ago), though, to be fair, some other people seemed to like it sufficiently for it to keep going.

    Edited for clarity.
     
    Trish, Jul 2, 2018
    #153
    Gary Burgess, MeSci and Andy like this.
  14. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    2,199
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    Thank you Gary, another good episode. Together we are stronger is very true of our community.
     
    Skycloud, Jul 3, 2018
    #154
    Inara, Gary Burgess, Trish and 1 other person like this.
  15. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Episode 9 was the last of the current series. I've asked whether there will be a new series soon...
     
    Lucibee, Jul 22, 2018
    #155
    Sly Saint, Trish, MeSci and 3 others like this.
  16. Andy

    Andy Committee Member

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    Is this new info? @Gary Burgess said at the end of episode 9 that "Next time, in the final episode of the series, we'll review the recent parliamentary debate about ME...." so I was expecting that episode at least.
     
    Andy, Jul 22, 2018
    #156
    Esther12, Lisa108, Lucibee and 3 others like this.
  17. Trish

    Trish Moderator Staff Member

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    I've seen on Twitter that Gary has started a new job on his local radio station, so maybe he hasn't had time (or energy) to do it.
     
    Trish, Jul 22, 2018
    #157
    Dolphin, Esther12, Gary Burgess and 6 others like this.
  18. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Indeed he did. I was expecting another episode too. But then when one didn't happen the following Monday, I must have rewritten my memory in the light of its non-appearance.
     
    Lucibee, Jul 23, 2018
    #158
    MeSci and Andy like this.
  19. Andy

    Andy Committee Member

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    Anybody up for asking Gary on Twitter? If not I could send him an email.
     
    Andy, Jul 23, 2018
    #159
    Inara likes this.
  20. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Lucibee, Jul 23, 2018
    #160
    Barry, Hutan, Trish and 2 others like this.
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