It will be interesting to see whether she actually tackles this when she realises how entrenched in their views they are or if she does a 180 a la Garner
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Trisha Greenhalgh on ME/CFS and Long Covid
- Thread starter Helene
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Jonathan Edwards
Senior Member (Voting Rights)
I was thinking more of a Buddhist Prayer Wheel
rvallee
Senior Member (Voting Rights)
Why early? It's still happening. So why only early on? Odd.
There was also that early paper that featured a whopper such as (paraphrasing) long haulers "felt" like their fatigue was different from CFS and thus viewed it as different. Without explanation. And in fact in contradiction with what was known, and since then very much debunked.
The author was one TG, or something like that. Should look into that, it's not good to misinform people in scientific literature, especially as a mere expression of opinion, exactly like what Carson and his buddies do.
There was also that early paper that featured a whopper such as (paraphrasing) long haulers "felt" like their fatigue was different from CFS and thus viewed it as different. Without explanation. And in fact in contradiction with what was known, and since then very much debunked.
The author was one TG, or something like that. Should look into that, it's not good to misinform people in scientific literature, especially as a mere expression of opinion, exactly like what Carson and his buddies do.
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Perhaps she wants ro see whether views changed over 3 years.
This is not the conventional way you do a literature review, just saying.
Maybe the problem is your use of dismissed which implies one form of aetiology as more worthy than another- as far as neurological symptoms go there is mounting clinical and scientific evidence of a functional cause but this doesn’t mean the patient is any less sick or deserving
jnnp.bmj.com/content/jnnp/early/2022/08/25/jnnp-2021-327899.full.pdf…. I think the contents of this are contestable but the group have done some of best early descriptive work if long covid
Would describe fnd as per dsm 5. Autoimmunity is a mechanism not a disorder and depends on how you define- eg could argue depression as an autoimmune condition - as to MS etc no of course not but can have MS and FND comorbidly ( prob in around 10% of MS cases)
In the scenario you describe i would consider removing AEDs as negligent. That said i ve never encountered any serious epileptologist or FND specialist suggesting what you outline
Think one needs to be careful to separate out recognised clinical syndromes from putative mechanism from incidentals. Ie finding say primary MS different from a modestly raised inflammatory marker from say a pineal cyst
Its a 2 way street- whilst there can be a bewildering array of novel mechanisms the clinical expression of neuropathological dysfunctikn remains a constant and careful description of this informs how we might consider such mechanisms ie tremor with entrainment tells us something
More Carson
Well since there are no validated treatments and i ve been explaining i dont think LC is one thing….
Its a 2 way street- whilst there can be a bewildering array of novel mechanisms the clinical expression of neuropathological dysfunctikn remains a constant and careful description of this informs how we might consider such mechanisms ie tremor with entrainment tells us something
No functional disorders must have a biology and that is becoming increasingly understood and inclydes structural and functional brain changes, inflammatory cascades and genetics
I’ll look in more detail but encapsulates my view that not helpful to think of ling covid as an entity but a heterogeneous group of conditions that are not necessarily closely related and extrapolation from one group to another not necessarily helpful
However part of the problem is fundamental misunderstanding of how brain works and the meaningless separation of brain and mind as demonstrated elegantly in this study
academic.oup.com
Fear conditioning as a pathogenic mechanism in the postural tachycardia syndrome
Norcliffe et al. demonstrate that in patients with postural tachycardia syndrome, the increase in heart rate that o
Well since there are no validated treatments and i ve been explaining i dont think LC is one thing….
Its a 2 way street- whilst there can be a bewildering array of novel mechanisms the clinical expression of neuropathological dysfunctikn remains a constant and careful description of this informs how we might consider such mechanisms ie tremor with entrainment tells us something
No functional disorders must have a biology and that is becoming increasingly understood and inclydes structural and functional brain changes, inflammatory cascades and genetics
I’ll look in more detail but encapsulates my view that not helpful to think of ling covid as an entity but a heterogeneous group of conditions that are not necessarily closely related and extrapolation from one group to another not necessarily helpful
However part of the problem is fundamental misunderstanding of how brain works and the meaningless separation of brain and mind as demonstrated elegantly in this study
academic.oup.com
Fear conditioning as a pathogenic mechanism in the postural tachycardia syndrome
Norcliffe et al. demonstrate that in patients with postural tachycardia syndrome, the increase in heart rate that o
Jonathan Edwards
Senior Member (Voting Rights)
Well, however unconventional the method, Greenhalgh seems to have saved herself the task of analysis. Carson has done it for her. A bit like a fly coming to sit on a leaf in front of a chameleon I would say.
Arnie Pye
Senior Member (Voting Rights)
I don't have a Twitter account, so I can't be blocked, and I can see everything that those with accounts have posted publicly.
These are the first four responses to the original tweet on this subject, as I see them.
I am shocked by the blasé tone of "Psychology is key to any recovery of course, but I'm sure you know that"
These are the first four responses to the original tweet on this subject, as I see them.
I am shocked by the blasé tone of "Psychology is key to any recovery of course, but I'm sure you know that"
Jonathan Edwards
Senior Member (Voting Rights)
Round, like a circle in a spiral
Like a wheel within a wheel
Never ending or beginning
On an ever-spinning reel
Like a snowball down a mountain
Or a carnival balloon
Like a carousel that's burning
Running rings around the moon
Like a clock whose hands are sweeping
Past the minutes of its face
And the world is like an apple
Whirling silently in space
Like the circles that you find
In the windmills of your mind.
...
Half-remembered names and faces
But to whom do they belong
When you knew that it was over
Were you suddenly aware
That the autumn leaves were turning
To the color of her hair
Like a circle in a spiral
Like a wheel within a wheel
Never ending or beginning
On an ever-spinning reel
As the images unwind
Like the circles that you find
In the windmills of your mind.
Person X can be muted by person Y, so that Y won't see X's posts (one-way).
Blocking X means that Y won't see X, but also X can't see Y (two-way). Blocking also prevents replies to and quote-tweets of Y's content by X.
Blocking X means that Y won't see X, but also X can't see Y (two-way). Blocking also prevents replies to and quote-tweets of Y's content by X.
If X is blocked by TG, it means that X is free to play with Y, Z and whatever mathematical formula they desire. X is also free to delve into chemistry and X is therefore a free radical.
rvallee
Senior Member (Voting Rights)
Which would require also looking at how things have been recently, not just early.
Because it hasn't changed. As her buddy Carson trying to sell how all the cool kids think it is clearly shows.
rvallee
Senior Member (Voting Rights)
No, it's really not. It's actually as superfluous as what people think of the color red. What a bunch of BS that says everything about the intent. I'm not sure she should be encouraged to write anything, in fact it would be far better if she'd stay out of a topic she clearly can't be bothered to actually learn anything about.
If anything she should be strongly encouraged to stay out of this on account that any contribution she makes would be bad for patients, but as a result of mass-banning the people most involved on this issue, she wouldn't even hear that.
Ugh. What is it with people who think their contributions are a gift to the world, even when they don't bother putting any effort into it?