Trisha Greenhalgh on ME/CFS and Long Covid

Helene

Helene

Senior Member (Voting Rights)
Split from Possibility of ME or PVFS after COVID-19, Long Covid


Just made the mistake of listening to part of "Trisha Greenhalgh Webinar on Long-COVID". Was hosted by the Canadian Institutes of Health Research in a series on Long-Covid, ME & more.

Blood still boiling. Basically said PACE was good research and went on about small, vocal group of patients ............ Can't even type it. Total gaslighting. Then gave example of prominent British physician who was first wary of graded exercise and later used it to successfully recover.

Am in Canada & wasn't familiar with Trisha Greenhalgh before watching. Is she actually involved in the NICE reviews? That's the impression she made.

ScottTriGuy thanks for getting your comment in.
 
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Helene said:
Am in Canada & wasn't familiar with Trisha Greenhalgh before watching. Is she actually involved in the NICE reviews? That's the impression she made.
Click to expand...

She seemed to think she was but when people have tracked down names she does not seem to be there. Not sure.

The idea that anyone should be defending PACE at this stage is horrendous.
 
Last edited by a moderator:
Helene said:
Just made the mistake of listening to part of "Trisha Greenhalgh Webinar on Long-COVID". Was hosted by the Canadian Institutes of Health Research in a series on Long-Covid, ME & more.

Blood still boiling. Basically said PACE was good research and went on about small, vocal group of patients ............ Can't even type it. Total gaslighting. Then gave example of prominent British physician who was first wary of graded exercise and later used it to successfully recover.

Am in Canada & wasn't familiar with Trisha Greenhalgh before watching. Is she actually involved in the NICE reviews? That's the impression she made.

ScottTriGuy thanks for getting your comment in.
Click to expand...

Where did you see that?
 
Helene said:
Just made the mistake of listening to part of "Trisha Greenhalgh Webinar on Long-COVID". Was hosted by the Canadian Institutes of Health Research in a series on Long-Covid, ME & more.

Blood still boiling. Basically said PACE was good research and went on about small, vocal group of patients ............ Can't even type it. Total gaslighting. Then gave example of prominent British physician who was first wary of graded exercise and later used it to successfully recover.

Am in Canada & wasn't familiar with Trisha Greenhalgh before watching. Is she actually involved in the NICE reviews? That's the impression she made.

ScottTriGuy thanks for getting your comment in.
Click to expand...

 
So now Greenhalgh has been given a platform to spread disinformation about us, continues to be good pals with the creators of this disinformation. And she was definitely involved in the LC guidelines, which happen to completely miss out on just that.

She actually lied about the PACE trial. Today. In a presentation that was supposed to inform about ME, instead used to disinform. This is just great. With allies like this.

 
Helene said:
Just made the mistake of listening to part of "Trisha Greenhalgh Webinar on Long-COVID". Was hosted by the Canadian Institutes of Health Research in a series on Long-Covid, ME & more.

Blood still boiling. Basically said PACE was good research and went on about small, vocal group of patients ............ Can't even type it. Total gaslighting. Then gave example of prominent British physician who was first wary of graded exercise and later used it to successfully recover.

Am in Canada & wasn't familiar with Trisha Greenhalgh before watching. Is she actually involved in the NICE reviews? That's the impression she made.

ScottTriGuy thanks for getting your comment in.
Click to expand...
 
Tweet from previous post taken down.

Am extremely disappointed in Karim Khan. What a horrible thing to do at this point (or any point) aren't we past all this?

ETA: Sadly there does not seem to be any charity organisation willing to take this kind of thing on here.
 
Helene said:
Just made the mistake of listening to part of "Trisha Greenhalgh Webinar on Long-COVID". Was hosted by the Canadian Institutes of Health Research in a series on Long-Covid, ME & more.

Blood still boiling. Basically said PACE was good research and went on about small, vocal group of patients ............ Can't even type it. Total gaslighting. Then gave example of prominent British physician who was first wary of graded exercise and later used it to successfully recover.

Am in Canada & wasn't familiar with Trisha Greenhalgh before watching. Is she actually involved in the NICE reviews? That's the impression she made.

ScottTriGuy thanks for getting your comment in.
Click to expand...
 
The above series of tweets by Peter White (a patient but not with ME and definitely not PDW)
is one of the best series of tweets I've seen that clearly and directly lays out the problem with politicised thinking from the BPS cabal and it's supporters. Has anyone on twitter called out Karim Khan for this disaster of an invite to speak?
 
She just recently published an article telling people that you shouldn't block your critics and instead engage with them...

She has not clarified any of the claims. Merely said "look at other things I wrote", which all confirm this is what she believes. She has praised Wessely and Gerada for those very claims many times in the past and took the exact same swipes at us, disparaging us as rowdy and unworthy of being listened to.

So much for patient engagement and listening to patients.
 
I don't know what exactly was said by Greenhalgh but I have it on very good authority that her comments weren't acceptable (from the patient point of view, no doubt from hers she can't see anything wrong at all).
 
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