United Kingdom: Action for ME (AfME) news

https://www.actionforme.org.uk/gcoe-2025-webinar/

Genetics Centre of Excellence: update on recent research
9 May 2025


We’re hosting a webinar to share the latest updates from research linked to our Genetics Centre of Excellence.

Don't miss this chance to hear directly from the scientists leading important discoveries and to participate in an engaging Q&A session with patient and public representatives.

Date: Thursday 6 June

Time: 2pm to 3pm

The session will be chaired by our Chief Executive, Sonya Chowdhury. It will include two presentations followed by a Q&A with scientists and Public and Patient Involvement representatives.





The 6th June is a Friday.
Can anyone clarify the date of the webinar? @Andy.
 
Last edited by a moderator:
Binkie4 said:
https://www.actionforme.org.uk/gcoe-2025-webinar/

Genetics Centre of Excellence: update on recent research
9 May 2025


We’re hosting a webinar to share the latest updates from research linked to our Genetics Centre of Excellence.

Don't miss this chance to hear directly from the scientists leading important discoveries and to participate in an engaging Q&A session with patient and public representatives.

Date: Thursday 6 June

Time: 2pm to 3pm

The session will be chaired by our Chief Executive, Sonya Chowdhury. It will include two presentations followed by a Q&A with scientists and Public and Patient Involvement representatives.





The 6th June is a Friday.
Can anyone clarify the date of the webinar? @Andy.
Click to expand...

Will be interesting to hear an update on the Ryback blood project and PrecisionLife, but I suppose no DecodeME update at this webinar means we won't be getting results before 6th June...

Playing the waiting game is hard.
 
This Friday we have the webinar with updates from Audrey Ryback and the PrecisionLife team, AfMe appear to be accepting questions in advance, I wondered if anyone had sent any in or maybe we could come up with some together?
 
www.actionforme.org.uk

The UK Government sets out its Spending Review - our response - Action for ME

Earlier today, the Chancellor set out the Spending Review and we are encouraged to hear the Chancellor’s plans to invest in the...
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The UK Government sets out its Spending Review - our response​

11 June 2025



Earlier today, the Chancellor set out the Spending Review and we are encouraged to hear the Chancellor’s plans to invest in the NHS. It is clear that this investment is needed, alongside a greater understanding of ME amongst healthcare professionals.

However, the Government’s proposed welfare reforms pose serious risks to people affected by ME. The views and experiences of the community, as part of the Green Paper consultation, must be listened to and acted on to prevent vital support being taken away from those who need it.

Furthermore, the Chancellor confirmed that annual funding for research and development will rise to £22 billion by the end of the spending review, representing a record level of public investment in UK R&D.

Biomedical research into ME is urgently needed to understand the disease, develop diagnostic tests and find treatments. We are calling on the Government to take urgent action to ensure a strategic approach for research into ME and associated post-infectious illnesses, including long Covid.

We will continue to work closely with our Parliamentary Champions and the APPG on ME to ensure that your voices are heard.
Click to expand...

The issues highlighted are being discussed in other threads but thought people would like to see what AfME posted.
 
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