United Kingdom: Newcastle-upon-tyne Hospital Trust

[Hutan]

I think the posts earlier in this thread about the comments that this service made about the draft NICE ME/CFS guidelines in 2021 remain relevant. From looking at the video above, I don't think the views or attitudes of the Newcastle services have changed. Indeed, the approach seems to ignore (ME)/CFS as much as possible and just talk about and treat 'fatigue' in an extraordinarily patronising way.

I wish there was a way to protect children with ME/CFS from the ministrations of this service. Instead, it now seems that the service's 'expertise' is being shared with other BACME clinicians.

 

[Suffolkres]

Supporting children and young people with persistent fatigue - Newcastle Hospitals NHS Foundation Trust

Information for schools and colleges, parents and carers, children and young people.

www.newcastle-hospitals.nhs.uk

 

[Suffolkres]

They are/were aligned with Estha Crawley....

 

[Trish]

Gawd. Yes! Though I think the set up, awkward off-camera eyeline and jump edits were more in the style of Mr Cholmondley-Warner and Grayson.

Ugh, yes, kids would be embarrassed to make something so bad as a school project. It's badly made, patronising and belittling of serious illness. I think it demonstrates what little value there is in the psychology/physio provision for kids with ME/CFS.