United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)


AI Summary:
Once is an accident. Twice is an oversight. Any more is a pattern.

Wherever we are is way more than a pattern, it is "just the way things are", systemic failure of choice. No one has even implausible deniability at this point, it's 100% intentional and calculated.

Bit of a twist on the old: "wait, we can throw all those babies out with the bathwater, and we can get awards for it? sign me the hell up because fuck those whiny babies in particular!"
 

Petition​

We want the government to provide more funding for further biomedical research and education on myalgic encephalomyelitis (ME)/chronic fatigue syndrome. ME Association UK estimates there are currently over 250 000 people in the UK with ME/CFS. Please help me and others who are suffering with ME/CFS.

1,590 signatures


At 10,000 signatures...​

At 10,000 signatures, government will respond to this petition

At 100,000 signatures...​

At 100,000 signatures, this petition will be considered for debate in Parliament

Created by Bronwen Hill-Shaw
Deadline 30 December 2025
 
  1. Letter from BMA and RCN to the Secretary of State for Work and Pensions, Rt Hon Pat McFadden MP 090DL IIAC RCN 3Rd Anniversary Letter To DWP 12.11.2025

‘Unconscionable’ that the Government has not recognised Long COVID as an occupational disease, warns BMA and RCN​

The BMA and Royal College of Nursing have today1 written to the Government urging them to recognise long COVID and severe post COVID-19 complications as a prescribed industrial disease for health and social care workers.

The letter, co-signed by the chair of the BMA Dr Tom Dolphin and the RCN general secretary and chief executive Professor Nicola Ranger, marks three years since the IIAC’s (Industrial Injuries Advisory Council) command paper ‘COVID-19 and Occupational Impacts’ was presented before Parliament.

The unions representing doctors and nurses are urging the Government to accept the recommendations of the command paper as a crucial first step in recognising the risks that health and care workers took on during the pandemic, as the letter reads:

“The UK Government needs to act quickly and provide support now to the many doctors and nursing staff, and their families, who have suffered significant financial losses as a result of contracting COVID-19 in the workplace and then developing Long COVID.”

Dr Dolphin and Professor Ranger warn in the letter to the Secretary of State for Work and Pensions of the ‘debilitating effects’ of Long COVID on numerous doctors, nursing and midwifery staff, many of whom were previously left, or remain, unable to work, leading to significant financial detriment. The letter notes that providing recognition of certain post COVID complications as an occupational disease would allow some of those affected to receive Industrial Injuries Disablement Benefits.

Supporting the call for the Government to urgently accept the recommendations in the command paper, BMA occupational medicine committee chair, Dr Kathryn McKinnon said:

“It is deeply disappointing that we yet again mark another year where the Government has failed to recognise Long COVID and severe post COVID-19 complications as an occupational disease in healthcare workers.



“Despite praise for the efforts of doctors and healthcare workers during the pandemic, the Government has fallen short of taking this necessary step to recognise, and go some way towards compensating, those whose lives have been significantly blighted by the long-term impacts of COVID-19, which they caught while at work.

“It is unconscionable that the Government has kept these workers, who put themselves at immense personal risk to keep our health services afloat and to care for our loved ones during the pandemic, waiting for so long for recognition.”

Calling on the Government to take immediate action, the RCN Head of Health, Safety and Wellbeing, Leona Cameron said:

“It is now three years since the Industrial Injuries Advisory Council made their recommendation to the Department of Work and Pensions for recognition of five post COVID-19 complications for the purpose of claiming Industrial Injuries Disablement Benefit.

"For those suffering from these conditions, this is three years too long and action needs to be taken now”

 
I don't know if they are aware that no one with LC is getting meaningful help, regardless of whether they work in health care. It doesn't seem so.

Because it really throws a wrench in the, frankly appalling, idea of singling out health care workers in some way. There was a very short period of time during which health care professionals were especially exposed to COVID, although not uniquely so, but that is long over, almost everyone has been infected multiple times, and the concept that being infected is actually good for health, it "builds up the immune muscle", has been accepted as a truism, pushed by medical experts and authorities. Especially with the profession being so hostile to doing any work or even be honest with the public about the situation.

Even accounting for this, there is no help available for a select few when no one knows how to do that for anyone, and it turns out the BMA has a fairly large responsibility at it, given how many opportunities they blew to do something about it.

I can't accept the notion that they don't understand most of this. This looks like cheap face-saving that they must know won't amount to anything.
 
I don't know if they are aware that no one with LC is getting meaningful help, regardless of whether they work in health care. It doesn't seem so.

Because it really throws a wrench in the, frankly appalling, idea of singling out health care workers in some way. There was a very short period of time during which health care professionals were especially exposed to COVID, although not uniquely so, but that is long over, almost everyone has been infected multiple times, and the concept that being infected is actually good for health, it "builds up the immune muscle", has been accepted as a truism, pushed by medical experts and authorities. Especially with the profession being so hostile to doing any work or even be honest with the public about the situation.

Even accounting for this, there is no help available for a select few when no one knows how to do that for anyone, and it turns out the BMA has a fairly large responsibility at it, given how many opportunities they blew to do something about it.

I can't accept the notion that they don't understand most of this. This looks like cheap face-saving that they must know won't amount to anything.
I think all the people who are getting fired for sickness absence from the NHS are a bit p-d off that they caught Covid at work in the NHS.

Imagine going to work for the state during a pandemic, getting ill, then permanently disabled and unable to work. Then the state doesn’t recognise your illness that they arranged for you to get.
 
Sad that’s it’s taken healthcare workers impacted to recognise the significant impact of these conditions.

It would be nice if the government looked at the various financial impacts on the rest of us of lost income from being unable to work, of family having to care for us, having to pay for care and adaptations, people losing homes, etc etc.

But having the BMA and RCN making a noise about this may help acceptance in the long run.
 
UK based Long Covid SOS charity is running a fundraiser.

£27.38k of £100k Raised​

28 Donors​

40 Days left​

Interestingly, the main fundraising page reports completely different numbers?

Current fundraisers​

£1.38k raised from 1 page

We are fundraising to recruit the first paid employee of Long Covid SOS to ensure the important work of this small charity is not lost with Ondine’s passing.
We aim initially to raise £100,000 enabling us to offer a part time position for 3 days per week over 24 months.
The Campaigns Manager will also work with fundraising specialists to secure multi-year funding commitments providing a longer term future for as long as the organisation is needed.
We are fundraising over the Autumn of 2025 aiming to recruit this position early in 2026 - any support you can offer would be greatly appreciated.

Newspiece about the fundraiser:
 
MEA:
1/2: MP Tessa Munt has tabled a debate on ME/CFS in Westminster Hall on 19 November 2025 from 4:30pm until 5:30pm

Please write to your MP and ask them to attend the debate next week!


#pwME #MyalgicE #MECFS #WriteToYourMP #Parliament #Debate

2/2: You can find your local MP using this link: https://members.parliament.uk/FindYourMP

N.B. There For ME have a template letter if you wish to use it:


 
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