United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

England only: Social Work England is under independent review. Evidence is being sought from everyone. I strongly recommend every family who has experienced persecution by social workers gives evidence.
Evidence to provide is, for example, did they refer to NICE G206? Did they include you in a ‘person-centred’ assessment about the level of care your pwME needs to accommodate PEM, ie not a made up story to fit their own agenda? Did they assess your own need as a carer to remain in employment, education or training? Did they assess your own need to have contact with other family? Did they assess your own need to maintain a habitable home?

The above link has been shared with me by Maeve's Mum.

It closes at 11.55 this Weds 26 Nov
 
The author, a doctor who treated Covid patients, denounces current attempts to downplay the government’s failures during the pandemic. She recalls how frontline staff sounded warnings weeks before the first lockdown, while leaders hesitated despite clear evidence from abroad and escalating hospital crises at home. Baroness Hallett’s inquiry rightly highlights that this delay cost thousands of lives. Scientific advisers also misjudged the situation, supporting a belief in behavioural fatigue and an assumption that mass infection was inevitable, which fed early talk of herd immunity. While difficult decisions were unavoidable, the government’s inertia contrasted starkly with the courage of NHS workers who faced extreme conditions with inadequate protection. Instead of addressing these failings, Boris Johnson now distracts and reframes the debate, showing little compassion for the huge loss of life. The author insists these deaths were real, preventable, and unforgettable for those who witnessed them.
 
A recording is now up here:
and

ME Research UK:

"Despite the devastating toll of the condition, people with ME have endured decades of substandard and sometimes downright unsafe healthcare, with pitifully little funding for research. In spite of the lack of robust evidence to this effect, ME is treated as though the condition is psychiatric." - Tessa Munt MP at yesterday's Westminster Hall debate. Read the gist of proceedings in quotes - https://tinyurl.com/mw5nek48
 
A recording is now up here:
and

AfME FB:

Yesterday, MPs gathered in Westminster Hall to debate government support for people with ME and what needs to change. We’ve pulled together a summary of the key points, actions, and commitments discussed, using AI to assist in summarising the Westminster Hall debate transcript.

Thank you to Tessa Munt for her continued commitment to the ME community, and to all the MPs who attended. We were pleased to hear MPs referencing points made in our briefing.

Read the AI summary here: https://www.actionforme.org.uk/ai-summary-of-westminster-hall-debate/

#MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis #WestminsterHall #Debate
 
This reminds me of a story in the US where a kid was praised for working many many hours selling homemade items to pay off the school lunch debt of other children.

«Look, someone did something extraordinary that was only necessary due to an extraordinarily cruel and inhumane system that they are forced to live in.»
 
This reminds me of a story in the US where a kid was praised for working many many hours selling homemade items to pay off the school lunch debt of other children.

«Look, someone did something extraordinary that was only necessary due to an extraordinarily cruel and inhumane system that they are forced to live in.»
There’s a whole reddit community dedicated to this type of absurdity ahah.
(Link)
(Link to Private Trackerless front-end)
 
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