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The Times / Our lives were frozen by chronic fatigue syndrome
By Damian Whitworth
https://www.thetimes.co.uk/edition/...-frozen-by-chronic-fatigue-syndrome-rdftnm75p
By Damian Whitworth
An energetic PhD student at Harvard, Jennifer Brea had her life shattered by ME. Now she has made a film, Unrest, about her slow recovery
Sitting cross-legged in the front room of a friend’s London house, Brea says that Britain’s lack of investment in research into ME and its guidelines on how to treat the illness make this “not an easy place to have ME”. At the moment the NHS lists cognitive behavioural therapy (CBT) and graded exercise therapy as the first two treatments for CFS/ME sufferers to consider.
In America the Centers for Disease Control and Prevention has removed these treatments from its website. Nice (the National Institute for Health and Care Excellence) said last month that it would review its guidelines on diagnosis and management of the illness. Brea says that CBT can help sufferers of chronic illnesses to adapt to their new reality, but it is being used to help people to overcome their fear of exercising again in an often crude way. This leads to them overexerting and suffering worse symptoms. “It’s as if you had a national guideline that recommended that diabetics eat sugar to feel better.”
https://www.thetimes.co.uk/edition/...-frozen-by-chronic-fatigue-syndrome-rdftnm75p
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