Whitney Dafoe Updates

[DHagen]

From 9 April 2026:

https://www.whitneydafoe.com/mecfs/?post=in-the-hospital

Highlights from the update:

I’ve been in the hospital for the last 10 days in a pretty serious condition.

My last Hickman Port (also called a Central Line - like an IV in my shoulder that can last for years) got infected with a bacteria called Staphylococcus Aureus that causes blood clots, which formed and then spread to the right atrium of my heart!! And then they spread to my lungs from there as well.

One pleasant surprise has been how attentive and open the Stanford Hospital has beeen to ME/CFS. The doctors here have talked to my ME/CFS doctor multiple times and actually taken his advice. For example, they listened to him about getting a specific steroid before a contrast CT Scan so the contrast didn’t make me worse as it often does to ME/CFS patients. They actually listened and gave me exactly what my ME/CFS doctor recommended in the exact way he recommended it.

And they just renovated a whole floor of rooms and I was blown away to find how ME/CFS friendly they are! They even have huge windows with 2 levels of light blocking blinds operable by remote and mind blowing views of the sky that have been breathtaking for me after the same view in my room for 15 years. There are only a few small tweaks needed for these rooms to be 100% Severe ME/CFS friendly. Which makes me think "If they can do this by accident, why can’t the rest of the country make ME/CFS friendly hospital rooms and housing and emergency care wards, etc like we all so desperately need - on purpose? If it can be done by accident here, it can be done with intent worldwide even better."

PART 2: At Home

I’m back home from the hospital and want to add one more update to this video mostly so you know that I’m not at the hospital right now. I’ve been home for about 5 weeks, but really not doing well after an abusive discharge that was really a plot twist after the great care I received the whole rest of the time. I’ll be making another update about what happened because it’s a bit shocking. Plot twist! So stay tuned.

I’m soldiering on and hoping for better days ahead, just like all of you. There are so mamy dreams to work for and fulfill.