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Advocacy Action Alerts

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  1. Sly Saint

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    Sly Saint, Oct 30, 2019 ... 2
    Replies:
    28
    Views:
    3,753
    bobbler
    Dec 30, 2022
  2. Hutan

    Germany: IQWIG General Methods Handbook - submissions due on draft now 28 February 2023

    Hutan, Dec 14, 2022
    Replies:
    7
    Views:
    2,164
    MSEsperanza
    Feb 19, 2023
  3. Laurie P

    USA: Urge the Social Security Administration to Allow SSI Recipients to Receive Help with Groceries without a cut in Benefits. Act by April 17, 2023.

    Laurie P, Apr 5, 2023
    Replies:
    0
    Views:
    825
    Laurie P
    Apr 5, 2023
  4. ahimsa

    USA: Ask your Members of Congress to support the CARE for Long COVID Act! (from Solve M.E.)

    ahimsa, Apr 17, 2023
    Replies:
    1
    Views:
    1,005
    ahimsa
    Apr 18, 2023
  5. Adam pwme

    Very Severe ME - Photo Request

    Adam pwme, Jul 29, 2023
    Replies:
    2
    Views:
    850
    Hutan
    Aug 2, 2023
  6. Amw66

    A UK father on Twitter looking for experiences of harms from medical care for POTS, EDS and MCAS

    Amw66, Oct 24, 2023
    Replies:
    2
    Views:
    717
    Amw66
    Oct 24, 2023
  7. Braganca

    Tell the New York Times about ME

    Braganca, Feb 2, 2024
    Replies:
    2
    Views:
    970
    wingate
    Feb 5, 2024
  8. ahimsa

    Support Keeping Telehealth – Take Action Today! (#MEAction, USA)

    ahimsa, Dec 14, 2024
    Replies:
    0
    Views:
    245
    ahimsa
    Dec 14, 2024
  9. Yann04

    The Guardian: Share your experience of long Covid

    Yann04, Jan 17, 2025
    Replies:
    1
    Views:
    327
    Ash
    Jan 17, 2025
  10. Yann04

    Media Opportunities

    Yann04, Feb 2, 2025
    Replies:
    4
    Views:
    496
    Yann04
    Feb 19, 2025
  11. ahimsa

    Reddit Q&A session about #MEAction Medical Flashcards on Monday, Feb. 24, 2025

    ahimsa, Feb 22, 2025
    Replies:
    1
    Views:
    568
    Hutan
    Feb 22, 2025
  12. Jaybee00

    Very severe French patient needs help

    Jaybee00, Mar 3, 2025
    Replies:
    8
    Views:
    487
    RainbowCloud
    Mar 4, 2025
  13. hackorbee

    NIH Seeks Public Feedback on Strategic Plan for Disability Health Research (FY26-FY30)

    hackorbee, Mar 7, 2025
    Replies:
    0
    Views:
    229
    hackorbee
    Mar 7, 2025
  14. ahimsa

    From Solve ME/CFS - Tell your Senators to VOTE NO on proposed 57% cut to Research Programs (USA)

    ahimsa, Mar 12, 2025
    Replies:
    0
    Views:
    163
    ahimsa
    Mar 12, 2025
  15. Midnattsol

    Call for papers - Amplifying Marginalized Voices: conducting health services research by or with marginalized communities

    Midnattsol, Mar 13, 2025
    Replies:
    2
    Views:
    270
    bobbler
    Mar 14, 2025
  16. Yann04

    [Recruiting Research] Disabled People’s Experiences with Physical Activity

    Yann04, May 6, 2025 at 1:49 PM
    Replies:
    6
    Views:
    214
    PrairieLights
    May 6, 2025 at 9:22 PM
  17. Midnattsol

    2025: Survey on the draft protocol for the cancelled update of the 2019 Cochrane ME/CFS Exercise Review

    Midnattsol, Mar 14, 2025
    Replies:
    7
    Views:
    880
    Trish
    May 8, 2025 at 11:33 AM
Showing threads 141 to 157 of 157

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