General Advocacy Discussions

J
  • Sticky
What research do you want to see? (study ideas)
7 8 9
Replies
175
Views
27K
Cinders66
C
ahimsa
Telehealth is vital for people with Long COVID. Don’t let it disappear. (The Sick Times)
Replies
0
Views
109
ahimsa
ahimsa
Simon M
Published poems by Veronica Ashenhurst, who has Severe ME
2 3 4
Replies
71
Views
17K
Hutan
Hutan
A
Video query- Help appreciated
Replies
9
Views
1K
FicaR94
FicaR94
rvallee
Jonathan Howard MD and Science-Based Medicine
Replies
5
Views
367
Verity
Verity
ahimsa
Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved (The Sick Times)
Replies
2
Views
215
Cinders66
C
Sly Saint
Encyclopedia Britannica website: entry on CFS
Replies
13
Views
4K
Dolphin
Dolphin
Sasha
What advocacy use should be made of DecodeME results?
2 3
Replies
47
Views
4K
Michelle
Michelle
A
After DecodeME - next steps for the ME/CFS community?
2
Replies
29
Views
3K
ElephantNerd
ElephantNerd
Simone
Request: UK delivery plan - similar reports in US or Europe
Replies
6
Views
600
Simone
Simone
Hutan
ME/CFS Support Group online forums
Replies
9
Views
2K
Hutan
Hutan
Utsikt
How should biological researchers present their results about ME/CFS to the media - discussion thread.
4 5 6
Replies
101
Views
7K
hotblack
hotblack
S
3 Levers to pull to solve a disease
Replies
8
Views
1K
EndME
E
D
How to talk to a science denier
Replies
8
Views
1K
JemPD
JemPD
Dolphin
What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?
2 3 4
Replies
67
Views
14K
MSEsperanza
MSEsperanza
MSEsperanza
Useful arguments regarding the evidence provided by psychological and biomedical ME research?
2 3
Replies
46
Views
9K
Utsikt
Utsikt
forestglip
Attention grabbing media for spreading ME/CFS awareness
Replies
14
Views
2K
RainbowCloud
R
Hutan
UK Action for ME - policies, actions and publications - discussion thread
3 4 5
Replies
82
Views
11K
Sparkly Unicorn
Sparkly Unicorn
Sly Saint
Why are the majority of pwME rarely mentioned?
2 3
Replies
54
Views
16K
Sly Saint
Sly Saint
MSEsperanza
Finding (patient) advocates and (civil) scientists on social media
Replies
10
Views
2K
ME/CFS Science Blog
ME/CFS Science Blog
Hutan
Using LinkedIn for advocacy campaigns
Replies
5
Views
1K
RainbowCloud
R
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