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General Advocacy Discussions

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  1. Andy

    ME Association Statement on Exercise in ME/CFS and Long Covid, April 2021

    Andy, Apr 22, 2021 ... 2
    Replies:
    26
    Views:
    3,972
    NelliePledge
    May 3, 2021
  2. Simone

    ME/CFS and permanency

    Simone, Mar 4, 2019 ... 2
    Replies:
    28
    Views:
    3,621
    DigitalDrifter
    Apr 19, 2021
  3. Andy

    UK: National Institute for Health Research: Supporting patient and public involvement in research

    Andy, Apr 8, 2021
    Replies:
    0
    Views:
    769
    Andy
    Apr 8, 2021
  4. Robert 1973

    Suggestion for S4ME thread of ME testimonies

    Robert 1973, Jan 23, 2021 ... 2
    Replies:
    23
    Views:
    4,093
    Invisible Woman
    Mar 20, 2021
  5. Amw66

    Engaging with severly affected - surveys etc ( PLP survey coming up)

    Amw66, Mar 1, 2021
    Replies:
    1
    Views:
    1,163
    Kitty
    Mar 1, 2021
  6. ME/CFS Skeptic

    Can we call ME/CFS a disease?

    ME/CFS Skeptic, May 1, 2019 ... 2
    Replies:
    38
    Views:
    4,997
    arewenearlythereyet
    Feb 25, 2021
  7. Wyva

    How to pack a punch (reputable sources that link Long Covid and ME/CFS)

    Wyva, Feb 24, 2021
    Replies:
    4
    Views:
    1,204
    Wyva
    Feb 24, 2021
  8. RoseE

    ME patient organisations and evidence based information for their members

    RoseE, Feb 7, 2021
    Replies:
    5
    Views:
    1,048
    RoseE
    Feb 9, 2021
  9. MEMarge

    Reality of ME. How would you get this across (briefly) using words or graphics?

    MEMarge, Feb 4, 2021 ... 2
    Replies:
    25
    Views:
    2,723
    mango
    Feb 6, 2021
  10. Andy

    Emerge Australia launch their online community [groups and forum]

    Andy, Feb 4, 2021
    Replies:
    0
    Views:
    1,474
    Andy
    Feb 4, 2021
  11. ahimsa

    Solve M.E. Presents: Legislative Cafe Chat on Thursday, Jan. 21

    ahimsa, Jan 16, 2021
    Replies:
    2
    Views:
    1,452
    ahimsa
    Jan 23, 2021
  12. Amw66

    Ensuring severely affected can be heard

    Amw66, Jan 12, 2021 ... 2
    Replies:
    30
    Views:
    3,301
    dratalanta
    Jan 15, 2021
  13. ME/CFS Skeptic

    Fatigatio digital symposium in Hannover, 19 September 2020

    ME/CFS Skeptic, Aug 25, 2020
    Replies:
    9
    Views:
    2,210
    Ravn
    Dec 26, 2020
  14. RoseE

    What is an engaging, informative, short, accurate description for ME/CFS?

    RoseE, Dec 21, 2020 ... 2
    Replies:
    23
    Views:
    2,989
    Trish
    Dec 23, 2020
  15. Dx Revision Watch

    The future and funding of UK ME/CFS charities

    Dx Revision Watch, Sep 12, 2019 ... 2 3
    Replies:
    50
    Views:
    4,787
    Mike Dean
    Dec 6, 2020
  16. ME/CFS Skeptic

    Why is ME/CFS getting so little research funding?

    ME/CFS Skeptic, Nov 24, 2020 ... 2 3 4
    Replies:
    72
    Views:
    8,260
    chrisb
    Nov 30, 2020
  17. Sly Saint

    'Medically unexplained symptoms' (MUS, PPS, SSD) : Time for NICE to review the 'evidence'?

    Sly Saint, Nov 22, 2020
    Replies:
    4
    Views:
    1,719
    rvallee
    Nov 24, 2020
  18. ME/CFS Skeptic

    A proposal for ME Action: a commitment to evidence-based medicine

    ME/CFS Skeptic, Oct 2, 2019 ... 6 7 8
    Replies:
    154
    Views:
    19,823
    Trish
    Nov 6, 2020
  19. InfiniteRubix

    MECFS Patient Researcher Accolade Portfolio

    InfiniteRubix, Jul 28, 2020
    Replies:
    13
    Views:
    1,856
    InfiniteRubix
    Nov 5, 2020
  20. Andy

    Video: Solve ME/CFS Initiative: Fireside Zoom Chat with Citizen Scientist, Marian Lemle & ME/CFS Researcher, Bindu Paul MSc, PhD.

    Andy, Oct 31, 2020
    Replies:
    1
    Views:
    1,740
    Ravn
    Nov 4, 2020
Showing threads 81 to 100 of 214

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