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My urine began to smell odd around the time of my breathing crisis, which caused a huge downturn in my health. See thread called "My Latest Adventures." It's continued that way. Sort of like asparagus smell, but not the same exactly. It still smells odd.

Haven't had the energy to respond. But I come from an extremely cold climate, and fully support @andypants's complete post. The most important "structure" is what you have close to your body to maintain body heat. The tent is good for cutting down wind, but you can't hope to heat a tent up...

Sorry to hear of these findings, Svet, and yet glad that you found an explanation that might open up some new vistas for you.

That makes me so sad!

Unbelievable! Except that it's true! :eek::bawling::mad::cry::thumbsdown::arghh:

Following your example . . . . (skritch, skritch, skritch).;):):thumbup:

Man, I'm going to have to write small to get all that on a postcard!

My go-to is canned salmon. Loads of protein, few calories, and you can eat the whole can at once.

@Peter Trewhitt A teeter totter is the thing in the playground next to the slide, which I fell off of onto my head, and that's why I joined s4me!

This is my experience exactly, including CPR, a near drowning, IVIG, several surgeries, and assorted illnesses.

I must agree with Samuel on the general point that, too often, such events are promoted with insufficient attention to needs of the anticipated audience. Most ME charities are relying on the internet and its easiest methods rather than thinking clearly about what patients can manage. I'm...

I've had to give up one of my favorites, Donna Leon, because I can't tolerate the reader of her audiobooks, and can no longer read the book itself. :(

Thanks, Trish! (Edited to remove emojis that, in the light of day, seemed a little disrespectful.

I know what aka means, but why is it used in this context? Does she generally use the names interchangeably, and why an aka at all?

This research has implications for PwME who may rely on easy-to-prepare processed foods, and for those who try to watch their weight. It's an NIH study published in Cell Metabolism https://www.cell.com/cell-metabolism/fulltext/S1550-4131(19)30248-7

Absolutely fine, @dave30th. Just one of the many fascinating differences between UK English and American English.

Thanks for the laugh, @Obermann!

@JenB @JaimeS This has an extremely short deadline. I can barely take in the email by Dec. 7, let alone respond to a poll.

No fun to have all this going on, @Hell..hath..no..fury...! I wish you, your partner and your mom all the best. Take care of yourselves!:(:hug::(:hug::(

Thanks, @Andy. I didn't have the mental wherewithal to do more than skim the article, let alone clean things up nicely the way you have. :hug: