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Thanks to both in interview for hard work. Two suggestions for future, I think it wd be helpful to mention each time, to help uninitiated understand our apparent 'unreliability': 1. Post exertional exacerbation of symptoms, the way it hits you next day or later 2. the need to pace self through...

In the consultation with stakeholders, RCGP was one of those who saw no reason to change the awful NICE guidelines. I worry exactly what they would include in a new curriculum.

Just emailed mine (via www.writetothem.com ) who wont go as in cabinet, to ask him to encourage other Mps to go. Worth a go!

Setting goals - as if we need motivation! - is dangerous as no-one likes to miss a goal so too tempting to overdo it in order to meet them.

But I understood that NICE currently requires PEM as a symptom so shouldnt use as evidence the results of research that doesn't.

But didn't all these preceding studies use the the discredited Oxford criteria anyway, not requiring PEM.

I was already severely affected when mum with dementia wandered (in snow!), neighbour brought her to my house so I was forced to overdo it and it took 18 months to recover from this episode - not sure what you would call that, or advantage of trying to distinguish PEM from relapse or crash. I...

I disagree with saying recovery can take 1 day to two weeks! I am severely affected and have had relapse taking 18 months to recover from, another relapse 6 months, and I suppose the relapses that made me severely affected in the first place have lasted so far over 20 years!

Please add my name too, Graham - Veronica Jones

He certainly deserves a rest after gruelling rounds of Q and A at Unrest around the country!

No-one escapes my house, not even delivery people, without at least one ME awareness leaflet for the general public (larger print, bold and boxes) plus a copy of Laura Chamberlain's comic strip illustrating PEM, downloadable from www.mechat.co.uk/db/tips.htm I tell them briefly it is because of...

I forgot to say student was shocked, and she hadnt read the account in the student newspaper so I told her to check it out.

No didnt get a reply.

I am an alumna of QMUL and when the student rang me for donation I told her re PACe waste of £250,000 and refused to donate, and wrote to the principal to say so and that I am now ashamed to be associated with them. It was after the event though.

I suspect the powers that be at unis are busy with other matters and so just assume their staff are beyond reproach - look at QMUL forking out £250,000 to hide the Pace data.