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there still isn't much on their website...... no resources files whatsoever https://iafme.org/resources maybe slight disagreements re content? given AfMEs leaflets, am not surprised. Alexandra Heumber still named as contact on the website https://iafme.org/privacy-policy Didn't Sonia Chowdrey...

(BTW just tried to search on Action for ME under member and they don't come up ? ditto trying to tag them @Adrian ) But what this post is about: In this thread from August 2018...

the booklet on pacing is still there quoting pace and quotes from Dr Miller. https://www.actionforme.org.uk/uploads/pdfs/pacing-for-people-with-me-booklet.pdf eta: I don't think the employers guide has changed either.

@Barry and anyone else interested (series of videos) "The talk is about risks of doing multiple analyses, including looking at different subgroups, which can lead to false positive findings. The ways of reducing these risks are discussed"...

anyone know the source of the text in these tweets?

It’s hysteria, not a heart attack, GP app Babylon tells women https://www.thetimes.co.uk/article/its-hysteria-not-a-heart-attack-gp-app-tells-women-gm2vxbrqk

I watched part 1 of a 2 part program on BBC4 Eugenics: Science's Greatest Scandal UCL is the 'birthplace' of Eugenics dating back to 1904 (Sir Francis Galton see wikipedia https://en.wikipedia.org/wiki/Francis_Galton ) There has been an inquiry (ongoing) since last year. Angela Saini is one...

I looked up other publications by the author of this article (Craig Jackson) and found this one: Variation and Interactional Non-Standardization in Neuropsychological Tests: The Case of the Addenbrooke's Cognitive Examination. https://www.ncbi.nlm.nih.gov/pubmed/31550997...

https://www.eventbrite.co.uk/e/me-uk-research-ethics-public-health-journalist-dr-david-tuller-guests-tickets-75779964915 eta: good date for it! can't wait for the fireworks.:emoji_boom:

another one not on WHO. There is Post viral Fatigue syndrome as we know (includes benign M.E., and CFS) There is Postviral Encephalitis, and Postviral Encephalomyelitis under Viral infections of the central nervous system. the idea of 'Postviral or postinfection syndrome' is not new: see paper...

In case people are interested this is what happened about Diederik Stapel (as mentioned in article I posted above). December 2011 https://www.apa.org/science/about/psa/2011/12/diederik-stapel but he (DS) then wrote a book about it which was translated into english by Nick Brown. Haven't...

another interesting read here: “Do we have the will to do anything about it?” James Heathers reflects on the Eysenck case no wonder Sharpe is worried https://retractionwatch.com/2019/10/07/do-we-have-the-will-to-do-anything-about-it-james-heathers-reflects-on-the-eysenck-case/

as far as I am aware it should be Idiopathic Chronic Fatigue (without the syndrome on the end) https://me-pedia.org/wiki/Idiopathic_chronic_fatigue https://www.ncbi.nlm.nih.gov/pubmed/10721210 although ICF does not have a WHO classification

my original post on this was asking anyone for clarification of those statements which Michiel and others have now made; so no apology needed Barry. Clearly the authors leaving some contents unchanged, as in this case, doesn't help at all, and although the paper now has 'conclusions changed'...

https://www.s4me.info/threads/oxford-criteria-should-papers-using-it-be-excluded.2218/#post-40204

As with PWs muddling of the two https://www.s4me.info/threads/a-perspective-on-causation-of-the-chronic-fatigue-syndrome-by-considering-its-nosology-2019-white.10635/page-4#post-189049

https://www.mdpi.com/2227-9032/7/4/114/htm

video now on youtube (not sure why it says september?) Premiered on 7 Oct 2019