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  1. Simone

    Etiology: graphic representations

    Yep, I’ve got those.
  2. Simone

    Etiology: graphic representations

    I agree. I don’t think we do either, which is partly why I wanted to replace this one (which is currently proposed for this project). The people I’m working with want a nice picture, but I’m leaning towards us just providing a couple of sentences on some of the current hypotheses, to show that...
  3. Simone

    Etiology: graphic representations

    Hi brains trust! I’m looking for a graphic that presents a possible biomedical model of ME/CFS for a project I’m working on. I’ve got this one, from a Maes & Twisk article in 2010, but ideally I’d like something more recent and which isn’t framed as biopsychosocial. Any thoughts? Source for...
  4. Simone

    Chronic fatigue syndrome: progress and possibilities, 2020, Sandler and Lloyd

    Not sure if these have been posted here already, but the MJA has been promoting this review. They published this article in their Insight Plus newsletter (it’s possible to comment on this article, if anyone is so inclined. Both Brett Lidbury and Paul Fisher left comments a couple of weeks...
  5. Simone

    Chronic fatigue syndrome: progress and possibilities, 2020, Sandler and Lloyd

    I don’t read this as changing his tune. It’s still primarily focussed on fatigue, which is what he does (he’s acknowledged PEM, which is something. He almost always refers to “post-exertional fatigue” instead). He follows Central Sensitisation model of ME/CFS and has for quite some time now (and...
  6. Simone

    UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020

    What’s the hashtag for the conference? @Andy
  7. Simone

    ME Action: The EU committee on petition is preparing a resolution on ME

    Sorry, I’ve been AFK. I assume it’s residential address. I haven’t seen anything which specifies? Perhaps someone else will know more. This page on EU petitions (both to start one and to sign one) doesn’t specify, it just says address...
  8. Simone

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes, we’re still waiting to hear who will write the actual review. This is a good start though.
  9. Simone

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This is such good news! Even if the intention with having the independent advisory group was for it to be tokenistic, that would be really difficult with Hilda leading it. And the fact that they appointed Hilda, knowing full well who is and how she’s likely to approach this, also bodes well for...
  10. Simone

    ME Action: The EU committee on petition is preparing a resolution on ME

    For any non-EU citizens wanting to sign Evelien’s petition to support the EU resolution, ME Advocacy Network Australia will be collecting signatures from today until Fri Feb 21. To sign, please email the following to meadvocacynetworkaustralia@gmail.com Name Address (including country) Email...
  11. Simone

    Australia: Say NO to the cashless debit card!

    Yep. No matter what they do.
  12. Simone

    Australia: Say NO to the cashless debit card!

    For anyone outside Australia who would like to provide some support for us, you should be able to sign this petition: https://www.change.org/p/ask-jacqui-lambie-not-to-support-the-cashless-welfare-card
  13. Simone

    Australia: Say NO to the cashless debit card!

    It’s so disgusting. People who are poor struggle to pay bills because they, by definition, don’t have enough money. That lack of money is then used as evidence that they’re incapable of managing their finances (rather than reflecting the reality that social security payments haven’t kept up...
  14. Simone

    Australia: Say NO to the cashless debit card!

    This card is separate to existing accounts, so won’t affect joint accounts and won’t affect cash in your accounts, because Indue and the card can’t access your bank account. It’s like getting a brand new debit card account in your name only and at a separate bank (which isn’t a bank and doesn’t...
  15. Simone

    Australia: Say NO to the cashless debit card!

    The complacency of so many around so many topics: increased surveillance, meta-data etc. It’s mind-numbing.
  16. Simone

    Australia: Say NO to the cashless debit card!

    To be fair, not all online stores are banned, but there are restrictions, and some huge sites are banned (eg: eBay and PayPal), but others (like iHerb) are not. There are so many stories about people having issues with the card, but the government is just glossing over them all. They‘re...
  17. Simone

    Australia: Say NO to the cashless debit card!

    That’s terrible! How does the agent make people pay their rent?
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