Thanks @ahimsa , but the truth is that I've known @Esther12 for a long time now and can confidently report it is simply the result of a colossal brain, unbelievable organizational skills, and a susceptibility to flattery. (Only two of those are true)
Thanks @Simon M . I wasn't expecting you to get involved: it's much more important that you look after yourself! But thank you for your opinion – that is what mattered to me.
I've just read through all of this again, but can't find a comment on Twitter by Michael Sharpe along the lines of the PACE trial "just being a trial". Am I imagining it?
Thinking further, another possibility is looking at the way in which different specialities are beginning to work together to study ME: this collaboration is quite unusual.
I was thinking that @Simon M might be a good person to ask: his blog on current advances is so well-written, even I can...
The linking of large quantities of data is something that is at the forefront of a number of very different fields, and fits well with exploring cutting-edge technology, and high-powered computing.
My feeling would be that we could present the Horizon programme with a short, edited clip of a...
I think that's a good idea @Barry. I think the way to kick that one off is to find someone at the forefront of biomedical research into ME, someone with a good screen presence and style, who can talk directly to the science side of Horizon, bypassing the usual health folk.
I don't know much...
The four videos in the PACE "Trilogy" are now ready! (I underestimated how much had to be put into the third video!)
The PACE study was a flagship trial, aimed at demonstrating that cognitive behaviour therapy and graded exercise therapy could treat and even cure ME/CFS.
These are four short...
Thanks again all.
Those are good quotes, but unfortunately far too long for a wall poster. I'll be rambling away in my usual manner while they flash up on the screen, so there can't be too much reading to them.
I could quote just this bit:
but who is it that said it?
Please don't put...
I ought to explain that, unless I can come up with quotes and bits to "pin" on the back wall, the video is just a talking head, and as the head is mine, it's not exactly the most entrancing and irresistible viewing. So if I can distract viewers by posting the odd quote etc. on the wall, it would...
Thanks all. I'm only after a recent bad example to show as a background slide, so the Telegraph one is fine.
Now for the next challenge. Again, only if you have it to hand, do you have any quotes from Sharpe, White, Wessely that we "opponents of PACE" are against any suggestion of mental...
Well, like winter, my third video in the series has taken a long time coming, and may not prove to be to welcome, but tough!
I'm now titivating it up with quotes etc., and am looking for a fairly recent headline from a common UK newspaper suggesting that exercise is a good way to beat ME...
Despite being out of office, Prof Munafò has replied:
Dear Graham,
Thanks for your feedback. I’ll think about what strategies might be effective, and take on board what you say about the Network identifying poor quality work. As we grow that might be something we have the capacity to take on...
I'm thinking of sending this tonight:
Dear Prof. Munafò
Thank you for your prompt reply, and thank you for reading our briefing document.
Of course I am disappointed in your response, but not surprised. But perhaps you can advise us? Sadly, with very few exceptions, the only researchers who...
I've been good friends with Sasha for a long time now, and always value her help: that's a good thing, because I've needed it lots of times.
To be honest, no-one here can rub me up the wrong way. I know we are all on the same side, and when we have different points of view that just helps me to...
That's why I said "With only a handful of exceptions". I am always grateful to those who stood up and made comments, but as a proportion of related researchers etc. it is an absolutely tiny number, given how bad and yet how influential the studies are.
I like Sasha's rewording, and also like...
Draft 1: there's no point in spending a lot of time or effort into it!
Dear Prof. Munafò
Thank you for your prompt reply, and thank you for reading our briefing document.
Of course I am disappointed in your response, but not surprised. It has been a common response from many, varied...
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