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So Day 1 of the conference happened while I was asleep. Did anybody watch the livestream? Anything exciting? Do we know if they're going to post it on YouTube later?

@dave30th quoting the doctor in the article: So there is this group of patients that we now understand has an objective illness that is not psychiatric—whether it’s metabolic, neurological, or whatever. And what fascinates me is that this condition has been so mismanaged throughout medicine...

Thanks, Simone! To make it run for three days, you have to just do it again twice, for each of the other two days (not a very efficient system!). :)

Would you like to add this to the calendar, @Simone (via 'Thread tools')? It's being livestreamed:

I see that comments are allowed, @Jonathan Edwards, @dave30th, @Tom Kindlon, @Carolyn Wilshire...

And, for the fourth time of asking, 'liked' by 29 people now, can I please have a response to this: https://www.s4me.info/threads/open-letter-to-the-trustees-and-staff-of-action-for-me-about-the-toolkit-for-professionals.7629/page-8#post-143863 You posted this: And I replied this: So this...

Want to add it to the calendar, @Andy? :)

I misread this title as 'The Trish Times' and thought, 'Great! @Trish is doing a news blog!'

Can patients attend that?

There's on in Norway in March and the IiME one. Is that it? The CMRC are skipping a year, IIRC.

Good article, I thought.

Good idea. What do you think, @dave30th?

I would have been all in favour of that for the bizarre and insulting review of the Wilshire paper submitted to BMJ, that accused the patient-authors of not really being patients. Reading that review would really have opened people's eyes to the sort of irrational shit that PWME are up against...

Still, I like the idea of taking a thing from ME that needs to be applied across science and making sure everybody knows where it came from...

Doctor of Public Health, not PhD?

Thank you for responding, Clare. But I don't think you've answered my question. I said: So you don't say whether you accept that David's description is correct, and I can't see from your response that you accept that, if it is correct, AfME would have to contact DWP and explain that the...

I've wondering how susceptible that study on loneliness is to the correlation/causation issue - that is, illness that impacts mortality causes loneliness rather that that loneliness impacts mortality. I haven't read the paper it's based on, though.

Very kind of him to point out this opportunity and to help patients make sure there are still spaces. Very thoughtful!

If that's the kind of thing he says, he's likely only to be followed by people who like that kind of thing, and they're unlikely to be either persuadable or worth persuading. I agree with @Andy - don't waste your anger-energy by pouring it down that pit - do something likely to have a payoff!

@Action for M.E. - I'm disappointed to again not see a response to this question, which got 13 'likes' here when I originally posted it and which I reposted again on 30 Jan. This specific issue is important to a lot of us and I'd appreciate an answer. Edit: Please note the 16 'likes' and...