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  1. Sly Saint

    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    Nurosym; Wearable vagus nerve stimulation https://nurosym.com/pages/d01?gclid=EAIaIQobChMI9aWB8Zi09QIVEJntCh3ZRAWWEAMYAiAAEgJHqvD_BwE found this on their website Dr David Strain and Long-COVID Treatment video and full transcript here...
  2. Sly Saint

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    ME/CFS – Top 5 learning points from the new NICE guideline | NB Medical https://www.nbmedical.com/blog/mecfs-top-5-learning-points-from-the-new-nice-guideline
  3. Sly Saint

    UK: Disability benefits (ESA and PIP) - news and updates 2021 - 2022

    I didn't realise that what was called Income related ESA had been abolished; With the roll out of UC, 'Old style ESA' has been replaced with 'New style ESA' https://askcpag.org.uk/content/207210/old-style-esa-who-can-get-it
  4. Sly Saint

    Oxford criteria

    someone has asked me for the source of this; so thought I should post it here It was posted on PR back in the day........ "Wessely supervised the appointees to the committee https://www.dropbox.com/s/92m09l9tq55pihh/Behind the Scenes - Research Collaborative.pdf Professor Holgate then...
  5. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    see https://www.s4me.info/threads/interview-with-dr-john-greally-on-his-me-cfs-research-he-is-fundraising-for-me-cfs-advocate-liz-carlson-also-talks.22674/ also https://www.s4me.info/threads/video-phil-murrays-me-cfs-full-recovery-story-call-for-more-research-funding.22256/#post-371520
  6. Sly Saint

    Psychology today: Post-Infection Illness

    by Ilene S. Ruhoy M.D., Ph.D. Your Neurology https://www.psychologytoday.com/gb/blog/your-neurology/202201/post-infection-illness
  7. Sly Saint

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    https://journals.lww.com/americantherapeutics/Citation/9000/Repurposing_Drugs_for_Post_COVID_19_Fatigue.97973.aspx pdf only
  8. Sly Saint

    Metabolomic Evidence for Peroxisomal Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2022, Levine,Hornig,Lipkin et al

    Threads for the preprint and final paper have ben merged. Abstract for the final paper here. PREPRINT Evidence for Peroxisomal Dysfunction and Dysregulation of the CDP-Choline Pathway in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Xiaoyu Che, Christopher R Brydges, Yuanzhi Yu, Adam...
  9. Sly Saint

    Valerie Eliot Smith charity complaint

    from the second email You might care to read that very old book “How to win friends and influence people“. I have a 1964 publication of that book but I think it was written in 1938. It is written entirely from a mans perspective and directed at men. With regards to women, he talks about giving...
  10. Sly Saint

    Comedians could be prescribed on NHS to help patients struggling with trauma: Bristol Uni

    I was going to jokingly say 'I wonder if there is a manual'; but it appears there is, or at least soon will be Improv Comedy Therapy Manual for Clinicians https://www.comedyistherapy.com/consultationsupervision
  11. Sly Saint

    Comedians could be prescribed on NHS to help patients struggling with trauma: Bristol Uni

    Article in Mirror; https://www.mirror.co.uk/news/uk-news/comedians-could-prescribed-nhs-help-25831867
  12. Sly Saint

    Guidelines website aimed at healthcare professionals - summarises new NICE ME/CFS guideline

    This might be a good link to share, as it has an accurate summary of the new NICE guidelines, and is listed under Neurology. Apparently for use by UK healthcare professionals. Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management By NICE23 December...
  13. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    in dire need of updating. Judging by the editing history, a lot of the misinfo comes from the Mayo clinic. most recently updated in Aug 19, 2021 https://www.britannica.com/science/chronic-fatigue-syndrome
  14. Sly Saint

    PaxMedica Plans to Initiate Phase 1B Study for PAX-101 (Suramin) in Patients with Long COVID-19 Syndrome

    that may be what the new guidelines say but as to what is happening in practice is another matter according to the NHS https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/diagnosis/
  15. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Damien Moore Conservative, Southport To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase (a) public awareness of and (b) support for people suffering from chronic fatigue syndrome, CFS/ME. Tweet Share Hansard source (Citation: HC Deb, 6...
  16. Sly Saint

    Podcast: Dr. M’s Women and Children First Podcast #13 – Dr. Peter Rowe, Chronic Fatigue Syndrome and Long Covid

    not listened to it so no idea about content https://www.docsmo.com/dr-ms-women-and-children-first-podcast-13-dr-peter-rowe-chronic-fatigue-syndrome-and-long-covid/
  17. Sly Saint

    Commonalities in the Features of Cancer and Chronic Fatigue Syndrome (CFS): Evidence for Stress-Induced Phenotype Instability?, 2022, Rusin et al

    Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) and Cancer-Related Fatigue (CRF) are syndromes with considerable overlap with respect to symptoms. There have been many studies that have compared the two conditions, and some of this research suggests that the etiologies of...
  18. Sly Saint

    Psychogenic Pseudosyncope: Real or Imaginary? Results from a Case-Control Study in (ME/CFS) Patients, 2022, Visser

    Abstract Background and objectives: Orthostatic intolerance (OI) is a clinical condition in which symptoms worsen upon assuming and maintaining upright posture and are ameliorated by recumbency. OI has a high prevalence in patients with myalgic encephalomyelitis/chronic fatigue syndrome...
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