I concur. We don't want to share their article, that is their narrative.
We want to control the narrative, and the (our) narrative is not about David's reporting, it is about a small group of powerful BPSers making money and harming patients on fraudulent research - and they are lashing out...
The one Millions Missing Canada had last year in downtown Toronto was on one of the busiest corners.
We considered that we had 2 audiences: passerby and live stream viewers via Facebook.
For the former we had postcard size info to pass out, some folks stopped to chat - and we had shoes of the...
I'm intrigued by the biocentrism theory by Robert Lanza:
https://simple.wikipedia.org/wiki/Biocentrism
Biocentrism is a theory given by the American biologist Robert Lanza which states that nothing is absolute in the universe. It says that the universe exists relative to us and can't exist...
And if politicians had ME for just one day, the very next day millions of dollars in ME research funding would start flowing.
And I do wish it upon them.
It must cross the minds of UK parents of all children with ME (or EDS, etc) that by staying in the UK, they are risking having their child taken, locked up and subjected to medical abuse, and risk their own false imprisonment.
It must be absolutely terrifying @Tilly
Just thinking aloud:
I...
If I was benevolent dictator, living with a chronic illnesses would be a prerequisite for having the job of deciding what applicants are eligible for disability support.
Lived experience is crucial in this context.
If you don't have a chronic illness, you are not qualified for that job.
I wonder how many of the 'maltreated' children will actually have had ME or EDS or some other un-acknowledged symptoms interpreted as parental abuse, only later to receive a diagnosis, thereby showing how abusive parents cause a whole range of symptoms.
When in fact, they've misdiagnosed...
Ugh.
Have you seen this new piece @dave30th ?
"Conclusions
mFND patients have distinct demographic characteristics compared with psychiatric controls. Experiences of abuse appear to be equally prevalent across psychiatric patient groups. This study establishes the socio-demographic and life...
Slight aside: Last night I listened to a podcast and the scientist called science research 'finance based evidence', the first I'd heard that term. (I'd go further and say 'finance based evidence making'.)
Perhaps 'finance based pressure' is really what the BPS profiteers are practicing, while...
Anger (and fear) are natural responses to trauma. Especially toward the perpetrators causing the trauma.
All psychiatrists, especially Wessely, know that invalidated trauma, deepens trauma.
Intentionally causing trauma is a sign of a sociopath.
Goldacre came to Toronto a few years ago to speak - he's quite the energetic presenter/performer and repeatedly asked when the anti-vaxxers in the audience would disrupt his speech and the audience loved it and loved him - at the end during Q and A, he answered a few questions and then again...
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