I think it could be helpful to distinguish more clearly between the question whether there is a medical knowledge gap with regard to biological sex differences and if there is such a gap, whether this is due to gender bias.
To my common sense (prone to errors) it appears to be obvious that when...
As I wrote on another thread, it's hard to take that there seem to be two parallel universes for pwME when you see the examples from Norway I linked above(*) or the development and application of "No-Isolation" robots (**) on the one hand, and the horrible experiences of families like Karina...
@Tilly , have you seen @Kalliope's posts on a project on adapted education for children and adolescents with ME in Norway?
It's in Norwegian, but perhaps it could help to demonstrate that there are some sensible people who take ME and the problems with regard to school attendance seriously and...
Thank you @Grigor, Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and @dave30th for your advocacy work.
I was not able to watch the video but copied the automatically generated transcript. The transcript didn't capture the posed questions, so I added a line "[Question]" where I assumed...
I think that is a common error: To think that when there is no" biological" explanation, then there is only a psychological explanation left - or vice versa: A psychological explanation could be disproven by a biological one (like POTS). In my view an anxiety diagnose has to be made based on...
I think that is a common error: To think that when there is no" biological" explanation, then there is only a psychological explanation left - or vice versa: A psychological explanation could be disproven by a biological one (like POTS). In my view an anxiety diagnose has to be made based on...
Would it be worthwhile to investigate the immunological mechanisms linked to interferon-ß induced flu-like symptoms in pwMS then? I think a majority of pwME has flu-like symptoms, at least during PEM phases, and these seem to me to be more specific than "fatigue".
[Edited to add: I realize that...
I don't know if these are the same interferon injections that people with MS get. PwMS report flu-like symptoms for 12-24h after their interferon injection, but no prolonged fatigue after the flu symptoms are gone.
It's fine to see basic research on fatigue. In my opinion, all research on fatigue should specify which type(s) of fatigue it is investigating, though: cognitive, "mental", muscle, motor; fatigue/ fatiguability / fatigue as part of PEM. I think, this should be the premise of comparisons between...
By the way, @Graham , my "like" referred to your self-irony and the hope you expressed concerning your brain cells, but was not meant to endorse your factual statement about the alleged quality of your letter writing or other alleged skills. [I don't think your letter writing skills were...
I just would like to add some thoughts about the "Reproducibility Network" announced by Munafò, and his "manifesto for reproducible science".
I find the University of Bristol's press release announcing the network very strange: It's almost content-free. The only content and names referred to...
I meant Munafo's network. Confounded his network and the BRTC after reading (not properly) @Graham's post:
https://www.s4me.info/threads/bristol-new-network-prof-munafo.5802/#post-105367
and seeing Munafo's name also mentioned in this thread.
Now I understand that the only connection between...
Seems to be a similiar manifesto. [Edit: It's an artcile by Munafò on the manifesto and the new network]
I referred to this one [the manifesto published on Nature (January 2017)]: https://www.nature.com/articles/s41562-016-0021. It's linked on the University of Bristol website...
Apologies for just popping in.
I am not able to read the manifesto linked on the University of Bristol website announcing a "Reproducibility Network that aims to improve the rigour and reliability of UK-led scientific research". Co-authors are Marcus Munafò and Dorothy Bishop, among others. At...
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