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  1. MSEsperanza

    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    I think it could be helpful to distinguish more clearly between the question whether there is a medical knowledge gap with regard to biological sex differences and if there is such a gap, whether this is due to gender bias. To my common sense (prone to errors) it appears to be obvious that when...
  2. MSEsperanza

    Children with ME, schools and the problems of FII diagnosis

    As I wrote on another thread, it's hard to take that there seem to be two parallel universes for pwME when you see the examples from Norway I linked above(*) or the development and application of "No-Isolation" robots (**) on the one hand, and the horrible experiences of families like Karina...
  3. MSEsperanza

    Children with ME, schools and the problems of FII diagnosis

    @Tilly , have you seen @Kalliope's posts on a project on adapted education for children and adolescents with ME in Norway? It's in Norwegian, but perhaps it could help to demonstrate that there are some sensible people who take ME and the problems with regard to school attendance seriously and...
  4. MSEsperanza

    YouTube: David "PACEman" Tuller in Amsterdam 2018

    Thank you @Grigor, Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and @dave30th for your advocacy work. I was not able to watch the video but copied the automatically generated transcript. The transcript didn't capture the posed questions, so I added a line "[Question]" where I assumed...
  5. MSEsperanza

    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    I think that is a common error: To think that when there is no" biological" explanation, then there is only a psychological explanation left - or vice versa: A psychological explanation could be disproven by a biological one (like POTS). In my view an anxiety diagnose has to be made based on...
  6. MSEsperanza

    Children with ME, schools and the problems of FII diagnosis

    I think that is a common error: To think that when there is no" biological" explanation, then there is only a psychological explanation left - or vice versa: A psychological explanation could be disproven by a biological one (like POTS). In my view an anxiety diagnose has to be made based on...
  7. MSEsperanza

    BBC Wales are planning a story on ME

    BBC Wales are planning a story on ME: WAMES homepage: http://wames.org.uk/cms-english/
  8. MSEsperanza

    Brian Hughes (2018): Psychology in Crisis

    David F Marks: https://davidfmarks.com/2018/09/21/psychology-in-crisis/
  9. MSEsperanza

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Would it be worthwhile to investigate the immunological mechanisms linked to interferon-ß induced flu-like symptoms in pwMS then? I think a majority of pwME has flu-like symptoms, at least during PEM phases, and these seem to me to be more specific than "fatigue". [Edited to add: I realize that...
  10. MSEsperanza

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I don't know if these are the same interferon injections that people with MS get. PwMS report flu-like symptoms for 12-24h after their interferon injection, but no prolonged fatigue after the flu symptoms are gone.
  11. MSEsperanza

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    It's fine to see basic research on fatigue. In my opinion, all research on fatigue should specify which type(s) of fatigue it is investigating, though: cognitive, "mental", muscle, motor; fatigue/ fatiguability / fatigue as part of PEM. I think, this should be the premise of comparisons between...
  12. MSEsperanza

    Bristol - New Network - Prof Munafo

    By the way, @Graham , my "like" referred to your self-irony and the hope you expressed concerning your brain cells, but was not meant to endorse your factual statement about the alleged quality of your letter writing or other alleged skills. [I don't think your letter writing skills were...
  13. MSEsperanza

    Bristol - New Network - Prof Munafo

    https://wonkhe.com/blogs/a-manifesto-for-reproducible-science/#comment-25008 :)
  14. MSEsperanza

    Bristol - New Network - Prof Munafo

    I just would like to add some thoughts about the "Reproducibility Network" announced by Munafò, and his "manifesto for reproducible science". I find the University of Bristol's press release announcing the network very strange: It's almost content-free. The only content and names referred to...
  15. MSEsperanza

    Bristol Randomised Trials Collaboration

    Thank you for reading and assessing the Munafó manifesto, @Jonathan Edwards .
  16. MSEsperanza

    Bristol Randomised Trials Collaboration

    I meant Munafo's network. Confounded his network and the BRTC after reading (not properly) @Graham's post: https://www.s4me.info/threads/bristol-new-network-prof-munafo.5802/#post-105367 and seeing Munafo's name also mentioned in this thread. Now I understand that the only connection between...
  17. MSEsperanza

    Bristol Randomised Trials Collaboration

    Seems to be a similiar manifesto. [Edit: It's an artcile by Munafò on the manifesto and the new network] I referred to this one [the manifesto published on Nature (January 2017)]: https://www.nature.com/articles/s41562-016-0021. It's linked on the University of Bristol website...
  18. MSEsperanza

    Bristol Randomised Trials Collaboration

    Apologies, I meant: http://www.bristol.ac.uk/news/2018/september/reproducibility-network-.html
  19. MSEsperanza

    Bristol Randomised Trials Collaboration

    Apologies for just popping in. I am not able to read the manifesto linked on the University of Bristol website announcing a "Reproducibility Network that aims to improve the rigour and reliability of UK-led scientific research". Co-authors are Marcus Munafò and Dorothy Bishop, among others. At...
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