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  1. Samuel

    "Soap"

    i don't know if i have tried salt soap. the soaps i have tried seem to be sodium or potassium hydroxide with oil or fat. i am told they precipitate glycerin [which is sometimes taken out]. apparently sodium or potassium can be chosen to make harder or softer soaps. for example, i reacted to...
  2. Samuel

    "Soap"

    i'd be interested to know what soap is. although this is off topic. i use a chemical witch's brew fake soap with sls and stuff in it. it still supposedly does the "link oil/fat with water" thing and thus probably attacks covid. i need something for laundry with guaranteed no soap. soap in a...
  3. Samuel

    Coronavirus: Advice from ME organisations

    @ahimsa idk what it does for viruses but xylitol is alleged to be bad for bad bacteria and good for good bacteria, at least for teeth. whether those studies are good idk. it can be made from beech. as a nose spray, it keeps my nose congested while making it runny. maybe somebody somewhere...
  4. Samuel

    Chloroquine and Hydroxychloroquine as treatments for Covid-19

    Mod note: This thread has been renamed and some posts moved from the thread: The biology of coronavirus COVID-19 - including research, vaccines, treatments ____________________ https://www.unboundmedicine.com/medline/citation/32074550/full_citation vvv The coronavirus disease 2019 (COVID-19)...
  5. Samuel

    Coronavirus: Advice from ME organisations

    nutritionally clueless question: what does "electrolytes" mean in practice? i know certain nutrients are electrolytes, and i know it refers to chemical properties, but what does one DO when told "electrolytes"? get lots of gatorade? ugh, unnecessary ingredients. ok, get potassium...
  6. Samuel

    Recommend soft safe earplugs, such as a soft medical grade silicone that immediately returns to its default manufactured shape [edited]

    i wear earplugs 24/7. i use disposables now, but there are issues. i wonder if there are any soft earplugs made out of a safe material. my old respirator had a soft silicone that would retain its shape. like that. [edit: i mean that it would RETURN to its DEFAULT shape and not squish around...
  7. Samuel

    Coronavirus - worldwide spread and control

    this has been making the rounds online in more than one place, seemingly. i get it second hand, so make of it what you will. the virus stays on surfaces for a week? hmm. === HOW TO AVOID GETTING THE FLU Dear Colleagues, as some of you may recall, when I was a professor of pathology at the...
  8. Samuel

    Where to get reusable respirators

    i am bedridden and already extremely precarious life. not prepared for coronavirus. [but i also need a respirator for mold and dust, which here is at really dangerous levels.] i had a survivair triple flange silicone blue half mask, but i think i ruined it. i can't seem to find any place...
  9. Samuel

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    not to comment on the op or the comments on it, but for the record, i strongly oppose truth and reconciliation commissions for large-scale misopathy. i want to write extensively about why but cannot atm. a little on it is near the end in my most recent blog post. last 2 posts never went out...
  10. Samuel

    Coronavirus - worldwide spread and control

    during the sars outbreak, a nurse in montreal posted to a private mailing list i was on about what conditions were like in her hospital. a bunch of medical staff just abandoned their duty. it did not sound good. otoh i saw a ted talk by a guy who kept treating ebola during a peak of that...
  11. Samuel

    Understanding persistent physical symptoms: Conceptual integration of psychological expectation models and predictive processing accounts, 2020, Kube

    i can't go into this correctly or in depth for health reasons, but as a clumsy statement of the obvious i'd like to point out a few observations. i believe in stating the obvious. i think it keeps everybody (including myself) on the same page. to me, most of this type of research, including...
  12. Samuel

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    actually, you do not need to be self-employed. or employed. or to get through what normal folk consider events. i also want to emphasize that it is not just exertion. to me, the debate about exertion is over those who have a problem with exertion. this might seem like this is the debate...
  13. Samuel

    USA: Cornell Center for Enervating NeuroImmune Disease and Maureen Hanson

    by Jackie Swift https://research.cornell.edu/news-features/researchers-duality-plants-biomedical
  14. Samuel

    Should ME organisations do more direct action to get more funding for ME research?

    hmm. [note: the following is off the cuff. for health reasons i don'thave it in me at this time to complete the more polished blog post on this i haev in my backlog. also i am not a lawyer.] did nih tell you this too? i believe nih's claim is misleading. they told me approximately the same...
  15. Samuel

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    that expertise in stress might make him just the right man, kind of. :) i am pleased as always that brian is fighting our corner. on the science, i want to say that stress, although not studied scientifically much yet, can profoundly affect m.e. in fact, m.e. could, in principle, be...
  16. Samuel

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    that's impressive growth. :[ suppose you get tbd as a child, but don't get any treatment. 40 years later, what could it look like? lots of symptoms? just a few? is it like meicc? is it distinctive? are answers to the above paragraph known? are they consensus among smart members of the...
  17. Samuel

    OMF: Individual Community Symposium Talks Now Available on OMF YouTube Channel (2019)

    https://www.youtube.com/playlist?list=PLl4AfLZNZEQPiRL9zpis8LtfaHBEMy4jS vvv The individual talks from the OMF-sponsored Third Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University are now available as individual talks .... ...(Transcripts will be made available at...
  18. Samuel

    MEAction: Join Our Values and Policy Initiative! September 2019

    first the standard of care question, then a general point, then what i'd most like #meaction to do. 1. standard of care regarding effective, adequate, etc. care: the who constitution and later documents hold that humans have a fundamental right to [paraphrase] the highest attainable...
  19. Samuel

    Design Your Own ME Hospital

    as many services and procedures as possible done on location, not in the hospital, for housebound and bedridden. rotation on duty for this so that personnel get to see what it is like. comprehensibe training for intolerances. full funding for this. more experienced personnel upon request for...
  20. Samuel

    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    he can testify to this effect (basically he can say anything needed to say in our case) in front of us congress. nih has confirmed this in email.
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