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I wish that more mention was made of patients working hard for ME Awareness, research integrity and funding etc rather than just organisations and charities. Some very productive patients have no formal link with any of them. I'm not mentioning this for me, because I do precious little. Some of...

I don't think the meaning of the hand movements is at all clear without some accompanying explanation. I hope people who do this account for that as I want our advocacy to be clear above anything else. I'm really not keen on the idea, but I guess for others it will be useful, doable and an...

I've learned something, thanks.

I get a kick out of The Bristol Cable just being in Bristol. I hope it's in the hospital waiting rooms.

If I overexert myself doing something quite physical I fall asleep when I rest afterwards during the day. I don't usually sleep in the day. It's like being a toddler napping after a trip to the park. So far so ok-ish. Then that night I don't sleep well, followed by PEM including insommnia for...

I made a comment up thread that I was glad that people who suffer baldness might be helped by this research (which I didn't read) because I know it can be very distressing. I wasn't thinking of male pattern baldness, but the medical conditions that can cause real distress. To me the humour here...

Yes, I know, it's just exasperating. Thanks for the smile trial link.

If it's a behind the headlines piece, why can't it include something about PACE being discredited. That's certainly happened behind the headlines.

If this research helps those who aren't able to grow hair, like Matt Lucas and Duncan Goodhew, that's great as I can imagine that for many in that situation it can be very difficult to live with; society having a tendency not to be kind to those who are different. If it helps with things like...

I see, thanks for responding and I can see why this is the case. I too am concerned that you will no longer be advising Forward-ME. Thank you for your work @Dx Revision Watch

Haven't read the article itself as I'm not signed up. I have a friend who was diagnosed with occult breast cancer (hope I remember the name right). Basically there was no lump to be found and the cancer was discovered at routine breast cancer screening. She's had chemo and has just had her...

@Trish - I would like your last post more than once if I could

Just commenting to say this is indeed 'amazebols'! I hope it goes really well, and well done

The DWP is a slippery beast and will have very good lawyers. They have lost before though. And the UN agrees with the claimant, who is a lawyer. let's hope he's got good legal contacts. It would be great if this was properly reported in the mainstream press. I bet if the DWP lose they will try...

Article by Steve Topple in The Canary The DWP is in court again and it could open the floodgates for countless disabled people. Link for the rest: https://www.thecanary.co/uk/analysis/2018/04/30/the-dwp-is-in-court-again-and-it-could-open-the-floodgates-for-countless-disabled-people/...

https://www.researchgate.net/publication/318156447_What_else_can_CD39_tell_us

@Amw66 the tag @AFME in your OP doesn't work because it should be @Action for M.E. :)

Thanks @Melanie - So this clip on twitter is from 2015; I thought at first that it was new It's useful to have a record

I'm a bit concerned that I can't get to grips with this subject - the details are just going in through my eyes and running away somewhere like sand (cognitive problems) but I know it's important. Is there a plan or strategy that I might be able to support; some action of some kind? If a...

Very clear and I would think very useful to others in the US. I hope more people do the same - Is anyone else also going down this route?