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@SallyC The kidneys do feel involved. They feel achy and sore along with the back area. I didn't understand what you meant when you said "Not this time round though?" Are you not experiencing it this time? Sorry you have had this too.

@TiredSam I get it across the back of the kidneys and up the back as well. It's a heavy, achy feeling and you want to stretch your back out but it doesn't make any difference. I noticed last Friday when I had it while out that any kind of back support helps until you can get to a lying down...

This could be the muscles in my back feeling sore after being up and doing stuff for longer than I should. It's a really unpleasant feeling and I just want lay down. Once I lay down for awhile it eases and disappears again. I feel it around the back of the kidney area and feel like I can't hold...

I often use the mild term in conversation but never have felt comfortable using it. My cognitive changes were significant and I was getting PEM, trying to hold down a full time job. In my experience once you get the symptoms of ME your on a downward spiral if you don't stop work and start...

Merged thread Why don't we had ads on tv about ME. How much does it cost? Could we put together an advertisement ourselves? Explaining how severe ME can get, that we are needing research and ask for donations to specific research we would like funded. This may have been brought up before. I...

. The only other thing I can think of in your case is that it might be a severed nerve or the nerve got damaged somehow causing a numbness. If so, you may get feeling back eventually. When I was in my early 20s one of my bottom wisdom teeth had an abscess under it, the pain was out of this...

Thank you @Jonathan Edwards I hadn't thought until now that it could be the new trek sandals that I bought a few months ago. I've never worn this sort of sandal before and it is curved upward at the toe end, more than other shoes I have ever worn. They could be creating more pressure build up.

Sorry this has worsened for you over the years @alex3619 I feel I may be prone to type 2 diabetes as my mother has it now and is injecting insulin and taking blood readings. I am going to start monitoring my bloods for a week every 3 months to get idea how I how I am processing blood sugar.

@Mithriel It sounds exactly what I experience, although I haven't yet experienced the numb pads feeling sore while walking, probably because I am mainly resting afternoon and evenings when I get it. I have also have had the white patches and wondered what they were. I haven't got any at the...

My first thought was a lack of circulation also. I get it mostly on my left foot. Although, pretty sure I have felt it on the other foot as well. I need to pay more attention when I next experience it. I know what the nail in the foot is like. I stood on one at work back in the late 90s...

It feels like a swollen numb patch, extra padding. I might take a picture of the area when I don't have it and then take another picture when I get it and see if it actually is swollen. Thanks for the company in sharing this @jpcv and I'll let you know if I learn anything more about it.

@Helen I thought it might be this too, but I don't get pain with it. I'll check again.

I mainly notice it in the afternoon and evening while lying down @Mij Feels like a patch of numbness on the pad of sole between toes. It feels odd. I've experienced a feeling of numbness in my hands as well. That one I think is due to ME though because when I was taking d ribose it would ease...

Just wondering if anyone else has or is experiencing this. I have only noticed this in the last year or so and it comes and goes, so it is not there all the time. I do notice it about 2-3 times a week though. It's a strange feeling, it's like a patch of numbness around and just below the web...

In regards to GP visits leading up to diagnosis of ME for gradual ME patients I wonder how many patients had severe cognitive symptoms as the most obvious symptom in the early mild years. I had significant change cognitively at my mild onset and in the background I was noticing something wrong...

Yes. In my mild ME years I didn't know I had ME but was getting symptoms of ME. I noticed I was not handling stress at work. Before my mild onset I handled stress at work. It got to the stage in my mild years I could no longer deal with the stress so left my job. I was offered other positions...

My brother was having Hep C interferon treatment at the very time of my severe ME onset, same year. His exhaustion sounded similar to mine. I had full-blown ME (in a huge and overwhelming immunological storm) that would not dissipate. It took a good two years for that immunological storm to...

@InitialConditions When I joined the forums years ago I deteriorated and could hardly put a sentence together. If I want to post in a thread that requires a lot more thought I won't read all the posts beforehand. If I did I would be too mentally exhausted to get my thoughts together. Scrolling...

I'm pretty good with too - to, but lately have had to question whether I did use them correctly. A few years ago I completely lost the recognition of bear as in bear a load. All I could see was the animal (bear) whenever I read the word bear. Recognition still hasn't come back completely but...

I saw Dr Vallings 10 months after my severe ME onset. I was so ill I could barely sit in the chair and talk to her. I handed a list of my symptoms over to her. It had taken me a hour to get to her and I burst into tears while with her. I was so so ill. She diagnosed me with ME and I was so...