Search results

  1. TiredSam

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Instead of starting with the problem and trying to find a solution to it, they invented a solution first and are now trying to find a problem that they can apply it to. Having sold their solution as soon as they invented it, the job of finding the right problem is now a matter of urgency.
  2. TiredSam

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    I just refound this thread and am skimming pages 2-14 in an attempt to catch up (currently on page 11). My first impression of Mark Baker's response is as follows, forgive my perhaps ill-informed paranoid speculations: This is not about ME or GET or CBT. It is about the government-backed BPS...
  3. TiredSam

    Unrest now on Netflix

    I noticed this when I watched, and thought "I hope @Valentijn never sees this, she'll be all over the forum like a Hollywood diva." And now it's too late. Who knows, maybe soon you'll be able to say that you appear in an Oscar nominated film? Or an Oscar winning film? No need to mention that...
  4. TiredSam

    Unrest now on Netflix

    Brilliant, I can tell everyone to watch it :)
  5. TiredSam

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    I was delighted to be told in Berlin that "you do realise that there's nothing we can do for you". At last an honest doctor. Patients really don't mind being told this if it's the truth. Pity some doctors seem to have such a hangup about it, and an even bigger pity that patients have to...
  6. TiredSam

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Distinguishing between false hope and real hope is a way of implying that the NIH have ever offered any hope at all to ME sufferers. I think many ME sufferers have learnt the hard way not to hope for anything at all from the NIH to avoid further disappointment. The idea of the ME community...
  7. TiredSam

    University College London launches open access megajournal to help solve the world’s biggest challenges

    Indeed. Also further proof of how influential and widely read S4ME already is ;)
  8. TiredSam

    Too much salt creates an auto-immune type effect in the brain

    I eat loads of salt, does me the world of good.
  9. TiredSam

    Trial By Error: My Six-Month Review

    I have my wallet open and am ready to peel off a crisp banknote.
  10. TiredSam

    Dr Myhill’s complaint to GMC about PACE authors.

    Can't quite bring myself to heed the call when Sarah Myhill cries "Tally Ho!" Too much controversy and quackery in her past for my liking. However, like James Coyne, she'll do precisely what she likes without reference to anyone else, and also like James Coyne, sometimes it's useful to us and...
  11. TiredSam

    Anger.

    This thread is all over the place. First of all it's in "Lifestyle and management", but there's nothing about lifestyle or management in it. The title doesn't tell anyone it's about Unum facts and figures. The first two lines, coupled with "for future reference" then a list of names makes it...
  12. TiredSam

    Unrest now on Netflix

    That's annoying, I told a colleague yesterday to watch it on Netflix. Hopefully it'll turn up soon.
  13. TiredSam

    David Bell about "slow sepsis" in ME

    The point I was making was that it is not degenerative for all. I think it is for some.
  14. TiredSam

    (Not a recommendation) Alastair Miller on CFS

    Absolute bollocks. I am currently sitting on my sofa feeling symptom-free. But I still have the underlying disease that is CFS. People can go into remission for years and get symptomatic again, they probably had CFS all the time rather than re-catching it. What this idiot is saying is that he...
  15. TiredSam

    Guardian: "People accept that I’m gay, but not that I’m disabled"

    I have never described myself as disabled either. Even though I don't think of myself like that, I think I'd probably qualify. I'd certainly take a disabled parking permit if one was offered, and use it, because the walk from my parking space to the classroom is something I could well do without...
  16. TiredSam

    Protest song about ME & Angel on the Water

    Something about the idea of @Graham with a ukulele is making me feel very uneasy.
  17. TiredSam

    Guardian: "People accept that I’m gay, but not that I’m disabled"

    Thought it was a good article. People often don't believe I'm disabled just because I walk around in my superman suit :rolleyes:
  18. TiredSam

    (Not a recommendation) Alastair Miller: The prognosis of CFS/ME

    I think he's a bit out of date, the PACE trial remains contentious amongst virtually all patient groups, many scientists and researchers, journalists, the CDC, everyone who's watched "Unrest", etc etc. Reducing all these concerned people to "some patient groups" is duplicitous to say the least.
  19. TiredSam

    David Bell about "slow sepsis" in ME

    In my case fluctuating, and not anything like as bad as it was when it started, due to pacing alone.
Back
Top Bottom