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  1. Binkie4
    Post

    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    Thanks @JohnTheJack . I am usually in safari but when I moved to chrome, I was offered a translation. It is a very, very sad story.
    Post by: Binkie4, Dec 11, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Binkie4
    Post

    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    Do not seem to have an English translation? ETA: am worse brain fogged than ever. What am I missing?
    Post by: Binkie4, Dec 11, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Binkie4
    Post

    NZ Herald running a series on EDS

    So sorry you experienced this @DigitalDrifter, and that you had a permanent worsening of your level.
    Post by: Binkie4, Dec 10, 2018 in forum: Other psychosomatic news and research
  4. Binkie4
    Post

    ME charity income versus other illness charities in the UK

    This irks me too @Sunshine3. It also makes me more determined to post about ME on my personal fb page, and I do. Not that I get many likes. But I...
    Post by: Binkie4, Dec 7, 2018 in forum: Advocacy Projects and Campaigns
  5. Binkie4
    Thread

    Genome-epigenome interactions associated with ME/CFS, 2018, McGowan et al.

    https://www.tandfonline.com/doi/full/10.1080/15592294.2018.1549769?scroll=top&needAccess=true Abstract published. Article behind a paywall....
    Thread by: Binkie4, Dec 6, 2018, 10 replies, in forum: ME/CFS research
  6. Binkie4
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    I found it a great shock to hear this said in the middle of (mostly) discussions about Brexit which like Nellie Pledge I have been watching...
    Post by: Binkie4, Dec 5, 2018 in forum: Other health news and research
  7. Binkie4
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    Live TV- BBC news channel, 107 here. ETA: about 12.35/40.
    Post by: Binkie4, Dec 5, 2018 in forum: Other health news and research
  8. Binkie4
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    Merged thread Original title: Prof Sir Simon Wessely was thanked by MP today, and thanks were repeated by Teresa May! Presumably this will be...
    Post by: Binkie4, Dec 5, 2018 in forum: Other health news and research
  9. Binkie4
    Post

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    Can I add another blood condition which creates more likelihood of clots? https://en.m.wikipedia.org/wiki/Factor_V_Leiden I have it but I don’t...
    Post by: Binkie4, Dec 1, 2018 in forum: ME/CFS research
  10. Binkie4
    Post

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    MP Sir Edward Davey brought up this point in the June Westminster Hall Debate, not specifically focussed on Cochrane, more on Nice.
    Post by: Binkie4, Nov 30, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. Binkie4
    Post

    Low-dose Naltrexone articles and experiences

    Many thanks @andypants.
    Post by: Binkie4, Nov 29, 2018 in forum: Drug and supplement treatments
  12. Binkie4
    Post

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    I find it hard to believe that Tovey could retain any credibility at all if he walked back from his statement to Reuters. Point 12 in Caroline’s...
    Post by: Binkie4, Nov 29, 2018 in forum: 2021 Cochrane Exercise Therapy Review
  13. Binkie4
    Post

    My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” will be free Wednesday and Thursday on Amazon

    Thank you @BeautifulDay. Book safely downloaded.
    Post by: Binkie4, Nov 29, 2018 in forum: General ME/CFS news
  14. Binkie4
    Post

    Low-dose Naltrexone articles and experiences

    Thank you @Sbag. I think I’m sorted. Thanks for the helpful info. ETA: will be discussing with doctor to check advisability in my case.
    Post by: Binkie4, Nov 29, 2018 in forum: Drug and supplement treatments
  15. Binkie4
    Post

    Low-dose Naltrexone articles and experiences

    @andypants. After a very heavy year, my functioning has deteriorated and, added to new comorbidities needing frequent hospital appointments, I...
    Post by: Binkie4, Nov 28, 2018 in forum: Drug and supplement treatments
  16. Binkie4
    Post

    2018: Discussion on the NICE procedure: what to expect next?

    Thank you @Michiel Tack for reviewing the process followed in 2007, and reminding us/ revealing what a distorted process that was.
    Post by: Binkie4, Nov 28, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  17. Binkie4
    Post

    Reply from Nice

    Just for information- we wrote a 4 page non template response to Sir Andrew, posted on 1st Nov. Not even acknowledged until we emailed a few days...
    Post by: Binkie4, Nov 27, 2018 in forum: General ME/CFS news
  18. Binkie4
    Post

    Increasing symptom intensity

    Did you go to a specialist EDS clinic? From what I understand there has been a lot of development in this area in last couple of years, and not...
    Post by: Binkie4, Nov 27, 2018 in forum: Pain and Inflammation
  19. Binkie4
    Post

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    [MEDIA] It seems to have been announced by Dr Shepherd after a Forward ME meeting. Minutes not yet released. Perhaps @Russell Fleming can confirm.
    Post by: Binkie4, Nov 27, 2018 in forum: General ME/CFS news
  20. Binkie4
    Post

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    I came back on just before I sent my last post. Am not opening the freezer.....should be ok. Off for 2-3 hours. The really alarming thing is...
    Post by: Binkie4, Nov 27, 2018 in forum: General ME/CFS news
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