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  1. JemPD
    Post

    A biopsychosocial network model of fatigue in rheumatoid arthritis: a systematic review, 2019, Geenen and Dures

    You retired ;):whistle::D
    Post by: JemPD, Nov 5, 2019 in forum: Other health news and research
  2. JemPD
    Post

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    indeed. But I still think this was really worth doing @Trish , and done very well too. Thank you! At least the reply takes what you've said...
    Post by: JemPD, Oct 30, 2019 in forum: Open Letters and Replies
  3. JemPD
    Post

    What paper found 25% of patients are housebound/bedbound?

    Perhaps asking the 25% Group? ... they might have based their name on something more concrete?
    Post by: JemPD, Oct 30, 2019 in forum: ME/CFS research news
  4. JemPD
    Post

    UK: Document: MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE, 2018

    yes i'm afraid that is exactly where we've come to.
    Post by: JemPD, Oct 25, 2019 in forum: Other psychosomatic news and research
  5. JemPD
    Post

    SEN Magazine: "ME and you" by Mary-Jane Willows

    I don't like how in the article all the examples given are of kids starting off doing a tiny amount & then gradually able to do more. It just...
    Post by: JemPD, Oct 24, 2019 in forum: General ME/CFS news
  6. JemPD
    Post

    UK: Document: MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE, 2018

    Only skimmed some of this document cant manage the rest, but I thought this bit was interesting (especially the bit I've bolded), & one of the big...
    Post by: JemPD, Oct 23, 2019 in forum: Other psychosomatic news and research
  7. JemPD
    Post

    Conference: Medically Unexplained Symptoms / Somatic Symptom Disorder Improving the Primary Care Response -Bristol, UK, July 2019

    :laugh::laugh::laugh:
    Post by: JemPD, Oct 22, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. JemPD
    Post

    ME/CFS services in the United Kingdom

    attitude changed for the better or worse @Amw66
    Post by: JemPD, Oct 21, 2019 in forum: UK clinics and doctors
  9. JemPD
    Post

    Guardian: [UK] Government forced into U-turn over disability benefits for chronically ill

    I do appreciate you sharing all your knowledge about all this with us @Simbindi You don't happen to know how I could find out what DWP tell their...
    Post by: JemPD, Oct 12, 2019 in forum: General disability topics and advocacy
  10. JemPD
    Post

    A proposal for ME Action: a commitment to evidence-based medicine

    Thanks Michiel please add my name to the list JemPD - member of S4ME & ME/CFS patient
    Post by: JemPD, Oct 12, 2019 in forum: General Advocacy Discussions
  11. JemPD
    Post

    Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS, 2019, Lien et al

    I hope someone is going to flag this up to NICE?
    Post by: JemPD, Oct 12, 2019 in forum: ME/CFS research
  12. JemPD
    Post

    The Chronic Elephant blog by hellytheelephant

    I like mine quite weak & very milky - which I know is utter heresy lol. But I never drank it till I was about 30 because i'd never tried it...
    Post by: JemPD, Oct 10, 2019 in forum: Relationships and coping
  13. JemPD
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    @Michiel Tack you are doing a fantastic job with all the summarising, it's beyond me, thank you so much for your efforts. Amen. Thank you LD for...
    Post by: JemPD, Oct 10, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. JemPD
    Post

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    Indeed. Or CF - which is what Logan refers to in the quote in the OP
    Post by: JemPD, Oct 9, 2019 in forum: General ME/CFS news
  15. JemPD
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    I'll be very surprised if it doesn't go exactly the same way as the last one, but maybe appointing AfME or the Sussex society as 'patient...
    Post by: JemPD, Oct 9, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. JemPD
    Post

    The Chronic Elephant blog by hellytheelephant

    Well I just put the kettle on...… :)
    Post by: JemPD, Oct 9, 2019 in forum: Relationships and coping
  17. JemPD
    Post

    Article Bristol Post - ‘I can barely lift my head’ - What it's like living with ME

    Who made the video I wonder it's the same one in both articles... it's not great. It's the only article I think I've ever seen though (I only...
    Post by: JemPD, Oct 7, 2019 in forum: General ME/CFS news
  18. JemPD
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Yes there are a fair few disagreements over here about the history too @Wilhelmina Jenkins so you may well be right.
    Post by: JemPD, Oct 6, 2019 in forum: Advocacy Projects and Campaigns
  19. JemPD
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    I'd not read that I don't think @obeat thanks it looks great & thks as always to the author too :)
    Post by: JemPD, Oct 6, 2019 in forum: Advocacy Projects and Campaigns
  20. JemPD
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Yes @MSEsperanza that is exactly the post I was thinking of! :) brilliant thanks. Precisely. It really strikes me as unhelpful when...
    Post by: JemPD, Oct 6, 2019 in forum: Advocacy Projects and Campaigns
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